Share. Connect. Love.
We are still waiting for the results of Adam's and my genetic test results -- 3 and a half weeks and counting! Patience is a virtue that I'm working on still! They are the key to moving forward as we need all our lab results back before we see a specialist. I'm hoping to hear something by the end of this week. [...]
We're starting to sound like a broken record, but we couldn't be more honest if we tried: This really tough experience has shown us how much goodness there is in the world, and how strangers can make us feel so loved. FEEL GOOD POST ALERT!!!![...]
This morning I received a phone call...
WE WON THE APPEAL![...]
We are home!
Emma was hooked up to the EEG monitor for 28 hours in total. She was a superstar.[...]
Well, today has been long (as predicted) and, hopefully, valuable. I wish I had the faintest idea what each of the 21 squiggly lines running across Emmy's monitor mean, but other than understanding that her heart is beating regularly I am at a loss. We will meet with her neurologist tomorrow around lunchtime. Fingers crossed for some results then![...]
We are settling in to our room (the same room we were in before!) and even have some of the same nurses, which is comforting. Emma has had two of the presumed "drop seizures" since she had the EEG attached, which means that the doctors will have good data to look at. [...]
Thank you.
To every single one of you who gave, whether it was a box of cereal or a financial offering: Thank you.
To those of you who have held, and continue to hold Emma in your hearts: Thank you.[...]
It’s been a while since we blogged, as we were relaxing in a week or so of no real symptoms. Emma had had such a fantastic week, we were starting to forget…[...]
