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Emma Morgan - Journal

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Posted 2014-07-19T13:18:43Z

One week on the seizure medication.

Emma has been on liquid Keppra for a full week now, and we have noticed some changes. The first few days she seemed very alert, and her therapists all independently mentioned how focused she was. However, the last three nights she hasn’t slept at all well. She has been waking up any time between 2:00 a.m. and 3:30 a.m. and remaining awake until somewhere around 5:30 a.m. With this development, Emma has been exhausted during the day, and has been exhibiting tremors, especially in the morning. Clearly being tired is exacerbating her symptoms.[...]

Posted 2014-07-16T16:47:57Z

Update

Emma has been doing really well on the new medicine so far. No real side effects that we have noticed, thank goodness! She is very focused and more attentive than usual, and is as much of a joy as ever! We are four days into treatment, so we will keep monitoring and reporting, and hoping for more strides forward! This morning she sat with me long enough to learn how to pull the cord on her Baby Beans doll, which is amazing! We couldn't be more proud:[...]

Posted 2014-07-10T13:54:18Z

The announcement!

We've been waiting to start organizing testing on me, I needed to get my own neurologist and meet with various physicians. Finally we are on track to start figuring things out, and it's definitely time, because...[...]