in partnership with Patient Caregiver Info

Posted 2021-10-03T23:55:49Z

6 Months!

Eric and I are celebrating an incredible milestone....he just reached the 6 month mark from diagnosis! What a crazy 6 months it has been! 

We were able to celebrate the 6 month mark with another adventure! One we have never done before! A friend gifted us their reservation at Granite Butte Lookout Tower.....a refurbished forest surface fire tower. Originally built in the late 1930's, it's now available as a rental to allow those of us who wish, a really unique outdoor get-a-way. Sitting high up on the continental divide, we experience big Montana views, a couple of beautiful fall CDT section hikes, an awe-inspiring sunset, a peaceful evening, spectacular stars, and a truly special sunrise. We were even able to watch one of the bigger Montana fires billow smoke from afar. 

While the 6 months hasn't always been as wonderful as this past weekend, we continue to use humor and positive thinking to push past the hurdles and obstacles thrown our way. 

The most recent medical updates show some cause for concern regarding "size progression". There currently isn't a great way to identify this size difference as either tumor growth or inflammation/treatment effect. Eric's care team is concerned that it could be tumor growth from the smallest tumor that wasn't able to be resected in April. 

So, after a lot of thought, processing, and consideration of options, Eric has decided to become part of another clinical trial. This one diagnostic in nature. Researchers at Huntsman in Salt Lake City are exploring PET scans with a couple of "new" radioactive tracers. While these tracers aren't new to the PET scan community and have been used for several years in other cancers, they are new to being used with glioblastoma imaging. The hope is that these tracers may be able to give us some additional insight into the tumor progression vs treatment effect debate and that may provide us with additional information moving forward. 

In a couple of weeks, we will head to Salt Lake City for a barrage of medical appointments, multiple diagnostic tests, and hopefully some answers!

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Comments (10)

  • Deena Carpenter
    Deena Carpenter

    You let me know if you need anything done when you are in SLC.

    4 years ago · Reply
    • Johnanna
      Johnanna

      Thanks Deena!! I will letcha know if we need anything!

      4 years ago · Reply
  • Maria Brosnan
    Maria Brosnan

    Beautiful pic--sounds like a lovely weekend! Thank you for the update. Sending prayers and hugs to both of you.

    4 years ago · Reply
  • Annette Ryerson
    Annette Ryerson

    What a beautiful place to spend the weekend. We are praying for both of you. The Ryerson's

    4 years ago · Reply
  • Jamie H (Cline family)
    Jamie H (Cline family)

    We hope that Eric's clinical trials illuminate the question (growth vs inflammation) and provide details to help move things forward. Beautiful photo and experience and may many more follow.

    4 years ago · Reply
  • Leigh Hutchinson
    Leigh Hutchinson

    What a beautiful photo and beautiful attitudes! You two are amazing. Praying for strength and wisdom in SLC.....

    4 years ago · Reply
  • Nancy Wright
    Nancy Wright

    So happy for your wonderful time at the fire tower. Prayers for you as you head to SLC.

    4 years ago · Reply
  • David Hitt
    David Hitt

    Looks amazing and congratulations on reaching this milestone! Thanks for sharing.

    4 years ago · Reply
  • Chris Miller
    Chris Miller

    What a wonderful way to celebrate such a momentous occasion. We hope that everything goes as well on your excursion to SLC.

    4 years ago · Reply
  • Kathryn Marie Ciano-McGee
    Kathryn Marie Ciano-McGee

    Glad you got to get away to such a beautiful place.

    4 years ago · Reply