Home & New Limitations
After 15 days in the hospital Jed finally came home last Thursday!
I Wish we could say that he is up and running around like always after being “locked up”, however this time that is not the case. Mentally, Jed wants to jump back into life full force, so the reality that he can’t physically has been difficult to accept. His lung function has not increased after a 2 week IV treatment. He does feel better than when he first went into the hospital so that is good. At this point we are trying to keep him as healthy as possible and fight off continued infection flare ups. With a double lung transplant you have to be sick enough to need it but healthy enough to receive it. We were informed that the first 48 hours Jed was in the hospital this time he would have been considered too sick for transplant if the opportunity had come. This was a huge wake up call.
We have so greatly appreciated everyone’s love, support, prayer and friendship through all this, so it is very difficult to say that for this season we are having to find a new balance that greatly restricts seeing and hanging out with our friends like we desire. We need to limit the risks of viruses and infections, the kids are learning to wash their hands when coming in the house and sanitize, sanitize, and more sanitizing. These restrictions on being with others are a challenge since we love doing life with people. The desire though to have my husband be healthy enough to receive a transplant has to be our primary focus for our family. Jed is concerned I will bubble wrap him and not let him out of the house. Haha.
We still are and will always be trusting God with Jed’s life. So, we are choosing to find joy every day God gives us together as a family. I am protecting this time for our family realizing the days could be numbered, but we know we will have an eternal future together.
I realize this is hard for you too as our friends because you want to see Jed and be there for our family. Just know we love you and will continue to seek out Matthew 6:33 and God’s wisdom as we walk through this time. Thank you for understanding.
Jed will not let me lock him in the house forever :) We love you all. Never give up! Keep living to the end. Make the most of every opportunity. Live out God’s priorities. Put the big rocks in first. Life is a vapor. Nothing is impossible with God.
Ok, Jed added that last paragraph. Ha. Peace.
Comments (12)
Love you guys! Praying.
Love you both so much, sending all our thoughts and prayers! You two are the strongest, most Godly family I have ever met, your faith and strength is inspiring to everyone you encounter.
Praying for miracles. Love you
Just Praising God and thanking Him that He is in charge and having faith that His will will be done. Love and Hugs to you all.
Praying, praying Kendra and Jed. You two have touched my life so much. You are such an inspiration in my faith journey. Love you guys. Take Care and Happy Resurrection Sunday.
We have missed your family so much. I wish we lived next door again. We are praying for you all, and prayers for many more years for Jed. You all are so precious, and so loved, and so much fun. Enjoy this season of laying low and cleaning house . Prayers.
Haas family we love you so much and we are praying for the gift of life for you Jed. Kendra, thanks for the update. We will continue to pray for a miracle for you guys... Thanks for the reminder of the brevity of life. ❤
I totally get it Jed and Kendra. Will keep lifting you up. God is in control.
Jed and Kendra, you have touched the world in a way that few people have. Thank you, from the depth of my heart for showing us how to live a life totally focused on God, living on mission and serving Him. "We will not all sleep, but we will all be changed - in a flash, in the twinkling of an eye... The trumpet will sound... And we will be changed. For the perishable must clothe itself with the imperishable, and the mortal with immortality." 1 Cor 15:51-53. What a great day that will be when Jesus comes! Especially for you Jed. You in your new glory-body! I love you guys <3.
Praying, Father in the Name of Jesus ... Sounds like God is getting you ready for a successful transplant! Praising n Praying! God bless you my brother! PS Kendra bubble wrap him; Jed go virtual! 😊
Kendra and Jed- Hello and big hugs! We are new to your posthope.org. So thank you for the update... Please know the Beanblossoms will be praying for all of you! Brian and NancyJayne
I love you both so much. From the depth of my soul... I can't even express what I feel for you guys. I know Jed is more worthy of my lungs than I am. I'd give them up in a heartbeat. You are the 'IT' family. Your love for others and your discipleship far out weighs anything I have ever seen. You both live each day to the fullest. You give more than you have. You love more than just words or hugs... your family's actions speak for themselves. You guys are the 'poster family of living life thru God's eyes'. I love you both so much.