Benefit News

First off we would like to thank all of the people who worked at and attended the benefit Dinner for Katelyn back home tonight. They raised over $6,000 which is amazing. We wish we could have been there to help out and thank you in person. Getting all of this support makes me feel like I should do something in return. It is hard not to since I am usual the one who always gives without asking in return. From the bottom of our hearts we THANK YOU!

Katelyn is holding her own. Her levels have not lowered other than her sodium improved a little. I guess the next few days we will have to make some hard decisions and arrange everything for her after she joins her brother and all of the other EB Angels. As they say- loosing a child never gets easier; you just learn how to cope better. The next time you have a bad day or think life sucks just think about what these kids living with Epidermolysis Bullosa (EB) go through each day. Katelyn has suffered more in her short life than I will in my lifetime. We will be EB advocates for the rest of our lives. Hopefully we can keep their memories alive with us as well. In all this we always remember we were blessed with one healthy son and he helps fill the holes in our hearts. We are thankful we have always had him to hold onto during these tough last three years. I could only imagine how hard this would be if we did not have him in our lives. Sean is the glue that keeps us strong. It is hard to believe Katy and I will have been married 10 years this July as well. I guess I am the lucky one for having these three beautiful kids and my lovely wife. Not to mention all of the friends and family who have supported us through thick and thin. I am not really sure where I am going with this discussion so I will say goodnight and thanks again for everything!