Life on Paper Photos Added

We were able to post 20 or so photos that our good friend Bri from Life on Paper Photography took. We used the B&W ones so you can focus on our beautiful daughter and not her wounds. EB is a terrible condition and it is hard to believe our little butterfly had to suffer so much. I can only imagine how much pain and suffering those with EB go through who make it to adulthood. I have more photos on our camera I have not yet had time to post. I will as soon as I get them on the computer. If you are in the area please use Life on Paper Photography for your photos. Bri is awesome and we cannot thank her enough for all of her time and support.

We should be able to bring Katelyn's remains home on Friday so we are thinking of planning a funeral back home in about two weeks. It will give us time to get her home and allow friends and family time to travel. Possibly Saturday the 9th of March. I will post the details once we arrange everything back home. Hopefully sharing our story has helped raise awareness about EB and help find a cure for all those still suffering. I know our lives will never be the same!