MDA Article

Back in November 2019, a company called Living in the Light was contracted by the Muscular Dystrophy Association to interview patients with rare diseases. They reached out and asked if we would be willing to participate. This included a family photoshoot and an interview. We agreed. The day before Thanksgiving, as we were prepping to host family for our second year in a row, we answered their questions and had a fun photoshoot in our home and in the backyard. We prepped food and cleaned the house while Jeff (writer) and Epli (photographer) spent the day with us. When it came time for a more formal interview, my parents came and helped out with the kids.  Here is the link to the article written about us.  It is weird to read about our life in this way, it is hard to believe it is real, but it is so very real. Jeff, the writer was so kind and genuine through the whole process, he traveled from Arizona to meet us.  The pictures captured are full of our pure joy and love, despite the sadness that may come through in the story. Epli, our photographer was absolutely incredible, they traveled all the way from California for this.  The work Living in the Light does is truly special.  They recently started the I Stay Home for Rare campaign and are raising money for those living with rare diseases who have been affected my COVID-19. Check out their site here.

More soon,

Leah