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Posted 2016-03-21T04:49:14Z

Busy & Fun Weekend

On Friday I got a call from MDA about the insurance. The woman explained that we are still waiting and that if insurance refused coverage, we'd have to look at photon radiation. I explained to her that no, we are going to get proton radiation no matter what, we'd fight with the insurance company and if the worst happened, we'd find a way to pay out of pocket. She then changed her tune and said Plan B is to talk with benefits at the university, explain that proton radiation protects my intellectual and cognitive abilities, and have them explain to the insurance company that my IQ is essential to my value as an employee. I called Jason and he got on the phone with various people who know about insurance. He learned that the doctor here needs to talk with the medical director at the insurance company. He then called the insurance company and it turns out, MDA didn't even submit the "urgent" claim until Wednesday afternoon (the day treatment was supposed to start). The insurance person basically said they haven't even looked at the claim, let alone denied it, because they have 72 hours to review urgent claims. Ugh. So now we should hear by tomorrow what the first response is and if it's no, then the doctor needs to talk with the medical director. Then, if that doesn't work, we go to the university. Then we have 2 rounds of protest before an outside examiner weighs in. I'm hoping that we can sign something with MDA that we will be responsible if the insurance does not pay, then start treatment while still dealing with insurance. We are getting a little impatient.

Besides that, it was a fun weekend. Claudia, Bill, and Wendy all left yesterday. Alex Chaudhry (Rawls) came by today for a while. Alex Dailey (former student from my first class I taught at TTU) came by this evening and we had a nice dinner followed by some fun political conversation. So at least we have plenty of fun visitors to distract us and help the time go by faster, however, I'd really like to get this show on the road!

The diet is going very well. I'm learning a ton and I've determined after hours of reading that I need to keep my sugars almost non-existent and my carbs below 50g per day. I was able to keep my carbs at 21g today and it wasn't that difficult. What's interesting is how much fat (134g today) I'm getting in my food, but everyone I talked to at MDA said that losing weight right now is not a good idea. If anything, I need to put on a little weight to get ready for treatment. So I'm officially not going to think about weight right now.

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Comments (7)

  • Bob McDonald
    Bob McDonald

    Fight those insurance company bastards.

    10 years ago · Reply
  • Jule Gassenheimer
    Jule Gassenheimer

    All I can say is Craziness. I wonder what Watson would say if feed all the data.

    10 years ago · Reply
  • Shyrle Hill
    Shyrle Hill

    UGH on the insurance issues....such a huge and trying phenomenon, not needed at this particular time?!?!?!?!? I feel certain that the "angels" you referred to on Facebook will get this worked out!!!!!!!!!!!!!!!!! Soooo glad you had a good weekend with friends! The "diet" sounds so healthy...makes me want to revisit mine.... Love you!!! S.

    10 years ago · Reply
  • Debbie Laverie
    Debbie Laverie

    Hi Shannon Keep up the fight but ugh!! Sending hugs and love D and D

    10 years ago · Reply
  • Nanci
    Nanci

    This is certainly an insurance cluster................hope that gets straightened out today as the urgent nature of the request must mean something. Surprised MDA hadn't started process sooner. I'm still confident it will work out but we still may need to do a "fund me" notice. Hang in there - stay positive and remember how loved you are and how important you are to all of us. Not having to really count calories -- what a treat! Could manage those carbs except for the no chocolate part! Or can you work some of that in?

    10 years ago · Reply
  • Charlotte Perkins
    Charlotte Perkins

    Praying that things are about to fast forward quickly. So surprised everything from MDA wa not in place. Hugs and prayers for you and your family. Thanks again for your updates. It's good to see you out and about and so much positive energy.

    10 years ago · Reply
  • Laura Sanders
    Laura Sanders

    Insurance is always a pain! Stay on top of them and hang in there! I am so glad to hear you have lots of visitors! Lots of continued prayers for you and your family.

    10 years ago · Reply