Today is the Day!
So after an emotional roller coaster with insurance, liquidating savings, not having the chemo pills yesterday, and then having my radiation appointment drop off the online scheduling system, we have just verified that treatment is starting today. The chemo pill is being called in and I will take it this morning. My radiation is scheduled for tonight at 6 PM. Today, tomorrow, and Monday are evening radiation and then we start mornings next week until May 4. This delay has been driving me crazy. I just need to feel like I'm doing something to fight this and for the last week and a half (really the last month since my surgery) I've felt like a refugee. In the last couple of days I finally had some minor meltdowns for the first time since this all started. Jason doesn't take those well so it's been a little tense. I'm just so happy to be moving on with this!
I would like to say thank you to our village for all of the notes, gifts, texts, etc. that have really kept us going. Without the support of all of you, we don't know where we would be. Most of the time I'm able to send a quick text to say thank you and I plan to send formal thank you cards when I am able. However, some gifts have come without notes. If you send something please identify yourself so that we can thank you properly. Some things we've received that we love and haven't been able to say thank you for (so hopefully I can do it here and the person(s) will see it) are meals from Blue Apron (really have come in handy), a glioblastoma awareness necklace that says "fighter" on it (very nice), a shirt with a pig face (awesome), and I know we've received a few other things without cards that I can't think of right now. All are very much appreciated!
Tomorrow, depending on how I'm feeling, I will post an update on how the first treatment went. It's amazing what a little forward movement will do for my soul.
Comments (17)
Lots and lots of hugs to you Shannon!!! so glad treatment is finally started and look forward to seeing you soon! Holly
Glad you are finally able to move forward. Can't imagine how stressful this has been. Good luck!
"Onward and Upward" to quote someone -- now all of us!!! Such a relief to start anything that's a deterrent at this point!! Yea!
Onward!
Remember, one day at a time SuperWoman. I am so glad you feel the LOVE.......because it is everywhere.
Glad to know you're finally moving forward with your treatment plan! What a relief. Stay strong and focus on the time when you'll be done with these therapies, and home and back at your routine. I remember just how much I wanted to get on with living. From afar, my heart's with you!! Would love to be there to hold your hand and offer soothing words.
Love and prayers -- remember how very amazing you are and that those "little meltdowns" help to relieve the pressure for you...oh yeah, and are completely normal!! We are with you in spirit -- you will shine brightly through this!!
Remember, you are not only a Superwoman, but indeed a Fighter! You guys are constantly in my prayers. We love and miss you!
Praying for you and the family Shannon. You are so strong you will get thru this. So happy that now you can begin this fight, which you will win. You are so loved. God has his arms wrapped around you and will be with you every minute of everyday now and forever sweet lady. Go Super Woman you have got this!
Your strength is just amazing. I know how frustrating everything has been recently, but I am so glad that everything begins tonight. You have so many people who love and support you all, and I'm glad today is happening!
love and prayers sent to you as you begin your treatments
I'd say you are entitled to more than a few minor melt-downs. And in fact, I'd argue that they are sign of healing and resilience, and oh yes being human:)). You can have an emotional reaction to what is going on, and then rip off a well written letter like you just did asking people to fight for Proton Therapy. GOOD FOR YOU. I am thinking of you today as you start treatment, seeing you surrounded by healing light.
I am thinking of you today, Shannon! You are amazing and a minor meltdown or two is warranted. Hugs!
Always on my mind. Sending you positive energy, prayers and get well wishes. xo
All of this stuff takes time & sometimes things are out of our control...take a deep breath & let things go as they will. You don't need extra stress. It will all work out. 🙃😊
It was great news you finally can start the treatment. It was frustrating to read about all the hassle they put you and your family through to get there, though. You have demonstrated a remarkable strength that also will do you good during the treatment over the next few weeks. Greetings from Anne Sofie and Kjetil
Glad you finally got some good news and that you are able to move forward. Hope your treatment is going well. Lots of positive energy going your way from both of us.