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Posted 2016-03-31T03:47:46Z

Not Much To Update

Today was about the same as every other day this week. The neighbor at the condo told me that I may start to get tired in the second or third week of proton so I am going to watch for that (I had my 5th treatment today). My scalp is a little more tender from the burn of the radiation and I've been told that this might get worse before the end of my treatments. I also think my hair may be thinning some, but I couldn't care less about my hair. Hair is the last thing I'm concerned about. I'm also not interested in wearing a wig. Perhaps a nice scarf, but I'll wear my bald head and scar proudly!

The most distressing thing I've seen is the number of children being seen at the proton therapy center. Tiny babies and toddlers are anesthetized for the treatment (because moving during treatment is an issue). After treatment they are watched until they wake up in a room right across from the room where I get my treatment. It makes me so sad to see them there. Their tiny bodies should not contain cancer. It just seems so wrong.

I've now taken the chemo pills seven times with no issues. Again, I'm told that side effects could start in a week or two. In total, I have 42 rounds of chemo and 30 proton treatments. We still have a long way to go. I'm really starting to get homesick. Yes, I said I'm getting homesick for Lubbock. Weird, huh?

 

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Comments (10)

  • Beth ratliff
    Beth ratliff

    Rothko. You forgot that. My fav part of the day outside of seeing you !!!

    10 years ago · Reply
  • Lin Humphrey
    Lin Humphrey

    Thinking of how strong you're being made me less whiny today about a procedure. And I'm a guy. We are wired for whiny when sick or hurt. I admire your strength.

    10 years ago · Reply
  • Marilyn Westfall
    Marilyn Westfall

    I wonder if there's a meditative CD that you might use to keep yourself bolstered. A friend of mine used one as means to get into a relaxed and meditative state when she was under duress, and she said it helped ease her tensions. Hate to think you're "feeling the burn." (Sorry.) :) Is there a topical that can be used? You've likely discussed these matters with your team. Arggh. Just want you to be well and at home!! Looking forward to seeing you when you are back in Lubbock! All best to you. You're always in my thoughts.

    10 years ago · Reply
  • Bob McDonald
    Bob McDonald

    There are probably a couple of meditation CDs under the tv on second floor. Keep thinking About getting this thing out of you. Stay positive. Rothko Chapel and Japanese Gardens in Hermann Park are great places to meditate. Hipsters are whiny.

    10 years ago · Reply
  • Margo monteith
    Margo monteith

    Thinking of you many times a day, Shannon, and praying that you are able to maintain your positive attitude and strength! You are amazing!

    10 years ago · Reply
  • Angie Campbell
    Angie Campbell

    You are the brave one in this family for sure! One week down!

    10 years ago · Reply
  • Megan Leah Winfield
    Megan Leah Winfield

    I agree wholeheartedly with you on the kids with cancer. It just seems like no child (or parent) should have to go through that. When I see them at the hospital when I am there for tests or treatment and they are getting these same tests that make me miserable, my heart breaks for them. Already a week done! Moving fast!

    10 years ago · Reply
  • Charlotte Perkins
    Charlotte Perkins

    Continue with your positive thoughts Shannon. We are looking forward to getting you healthy and back in your own home! Yes it must be hard seeing the little children. So sorry that anyone has to suffer with cancer. Praying for a cancer cure for all. Hugs sweet lady!

    10 years ago · Reply
  • Gail Madison
    Gail Madison

    Yeah, I understand getting homesick for Lubbock. When I am in Houston, all I can think about is that there is no horizon. If it isn't tall buildings obstructing the view it is trees coming right up to the street. I was there for a 3-day workshop once. Day one was okay. Day 2 I started asking where the horizon was. Day 3 I demanded that we get to the airport as soon as possible. There is something about Lubbock's vast sky that feels so comfortable. I agree with Molly Ivins--Lubbock is 83% sky and that is about right. Any way, keep on truckin'.

    10 years ago · Reply
  • Kathy Benish
    Kathy Benish

    It's ok to be homesick. And to cry & scream or whatever you need to do. There is nothing like being around your own things & in your own bed. Hang in there Shannon.

    10 years ago · Reply