Share. Connect. Love.

Posted 2016-04-25T15:27:57Z

Happy Monday!

It's 9 AM and we've already had a full Monday! We were at proton therapy at 6:30, today was my last 6:30 appointment. The rest are all at 7 AM. Only 7 proton sessions left for at least a while and maybe forever. This became very real when I filled my 7 day pill box (my advent calendar, as I prefer to call it) last night and only had 3 of each chemo pill left over. At first I thought it I'd miscounted somewhere but then I realized that the advent calendar is filled from now until next Sunday and then there are only 3 days left and chemo stops the same day as the proton! So it really is an advent calendar- it stops on Proton Christmas!

I am really looking forward to having a break and a rest after this round of treatment is over so that I can get ready for whatever comes next. For now I only know that I will be back here May 23-26 for follow up and I'm assuming we'll know more then. We do know that I will be on chemo pills for 5 days per month every month, probably for the rest of my life. I will be on the anti-seizure medication indefinitely. We also know that there could be more proton therapy and/or more surgery in my future. For now, however, I'm just focused on the last 7 days of proton therapy and the last ten days of the advent calendar. Could someone tell my husband that there's always a small and inexpensive good surprise in the last advent door. Thanks, that will be very helpful.

So on a scale from 1 to 10, how bad is it that I'm enjoying some downtime without Jason and kids while they are in Lubbock this week? Stevie and I were able to plan our meals for the week, do our grocery shopping, and pick up a few other things I need for this week without any interference. The condo does not have shoes, clothes, and random other things strewn about. I can actually watch the TV on whatever channel I want. I can sit in silence. Bad mother or not, it's awesome!

Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted

Comments (10)

  • Eva Atkinson
    Eva Atkinson

    Can you & Steve work in a Spa Day? Just an idea. At least a mani-pedi. Enjoy full control of the remote & your activities of daily living. No need for apologies. "Screw guilt."

    10 years ago · Reply
  • Lisa Viator
    Lisa Viator

    Hahahaha! I love the Advent calendar metaphor. Hopefully Ptoton Santa will come through for you! Regarding enjoying the down time, just ask Melissa Viator if she is ready for me to get out of her life. I've been in Boston for a week while she recovers from a kidney infection. I think she was glad for my help while she was in the hospital , but now that she is out and on the mend, she would rather I butt out! ☺️

    10 years ago · Reply
  • Lin Humphrey
    Lin Humphrey

    This is such good news. I'm so glad that you might have a return to some normalcy, whatever that new normal will be. You've got such an amazing attitude. I learn so so much from you!

    10 years ago · Reply
  • Angie Campbell
    Angie Campbell

    Yay! Almost there! We love you!

    10 years ago · Reply
  • Donna Hodge
    Donna Hodge

    EVERYONE needs a BREAK!!! Don't even speak the Bad Mother over yourself!!! U R THA BOMB💥💥💥

    10 years ago · Reply
  • Gail Madison
    Gail Madison

    Let's hear it for Advent! Proton Advent can become a new holiday--at least at First UU. Keep on keepin' on, m'dear.

    10 years ago · Reply
  • Debbie Laverie
    Debbie Laverie

    Hang in there, the change of routine will be good, miss you tough cookie.

    10 years ago · Reply
  • Lucy Acero-madrid
    Lucy Acero-madrid

    Lol advent calendar😁 I'm glad you got some alone time. I cherish those whenever I get them. You have an amazing attitude, keep it up girl

    10 years ago · Reply
  • Ann Rodriguez
    Ann Rodriguez

    Alone time is essential -- it's what makes mothers good...not bad!! Love the advent calendar!!

    10 years ago · Reply
  • Nanci
    Nanci

    It rates a 10 for sure!! Relax and enjoy a fun time with your brother and without those annoying kids and husband!! All wonderful but -- I vant to be alone!!! as per one of the Gabor sisters I think -- darn - Bill would know right off!!! Love the Advent bit and the celebration after this stage is over!! Not to be missed, I'm sure. Love you tons!!

    10 years ago · Reply