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Ava Jean Finelli - Journal

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Posted 2019-01-09T19:41:49Z

Happy New Year!

Happy New Year! We were so happy to spend all the 2018 winter holidays at home and with family instead of inside hospital rooms.

Ava has improved by leaps and bounds since our summer update. She's growing stronger through continued occupational and physical therapy sessions. We've stopped going to Children's Specialized Hospital and instead opted for in home therapy to avoid cold / flu germs. From her continued therapies she's now gained head control and is able to sit independently for several minutes! The head control alone was an amazing milestone but now seeing her sit up and play we can hardly contain our excitement about her progress. It really shows how miraculous Spinraza is and how hard Ava is working to succeed. She's continuing to inspire us every day. [...]