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Ava Jean Finelli - Journal

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Posted 2019-07-31T22:25:25Z

Long Overdue Update

Wow I can’t believe it has been since January that we’ve given a blog update on Ava! She has been so busy we just haven’t had the chance! The great news is that since our last post Ava has gotten sooo much stronger. She’s hardly that same little babe that was just learning to hold her head up over the winter holidays. Ava now sits up independently for more time than we can count. She wears a brace for spinal support but her overall core control keeps her in that upright position. She holds her head up all day long on her own. And her vocabulary boomed…she talks in pretty much full sentences already, her doctors told us SMA kids were smart but we’re floored![...]