MONDAY, OCTOBER 29, 2018
Everyone had an amazing time at Brian Fest this past Saturday! What an absolutely incredible community! Copy link into browser to see highlight reel! https://youtu.be/kMaEVWKDrj0[...]
Everyone had an amazing time at Brian Fest this past Saturday! What an absolutely incredible community! Copy link into browser to see highlight reel! https://youtu.be/kMaEVWKDrj0[...]
We are really reaching out to everyone for your prayers! Brian is unfortunately experiencing some difficulties with the new medication Duke is trying. He is currently in Alexian Brothers Hospital and the neurologist would like to take him off all the medication so he can rule out what's causing Brian's cognitive issues as well as difficulties with the left side of his body. He did have a seizure while in the emergency room Thursday night and is having intermittent bouts of hiccups. They are giving him an anti-seizure medication as well as something to try and get the hiccups under control. We are taking things day by day and hope they can get Brian back on the road to recovery. We sincerely appreciate everyone's prayers ... we all know what the power of prayer can do![...]
We had a real good visit with Duke yesterday. A lot of questions were answered as to what is going on with Brian. The tumor is not growing but the side effects of radiation and chemo have some areas of the brain (near where the tumor was) which are in atrophy which is not uncommon. Duke has decided to stop the chemo medication he's on (called Temodar) and will start a medication that helps grow healthy blood vessels to those areas (but kills blood vessels to tumor areas) in order to make the brain healthier in those areas. Brian will be put on a medication for people who have had a brain injury to help with cognitivity. He'll be taken off a lot of other medications that were helping with the chemo side effects. We're hoping this will really start to turn things around for Brian so he can start feeling better and get back to the Brian we know. Once again we want to thank everyone for all your prayers and support. We would not be able to get through this without all of you![...]