Hey All,

We just wanted to let everyone know that Post Hope (which has been our official platform to share info about Caleb over the years) is officially shutting down in 20 days.  We will continue to post any updates about Caleb on our facebook and instagram pages moving forward. If social media isn't your thing (and I don't blame you) fee free to reach out via email for any updates!  Thank you all so much for following our story over the years and for continuing to be such an incredible supportive community for us! We will be posting an update today on social media as today was Calebs First Day of School!!! Thank you all again so much![...]

Hi everyone,

We realized recently that it has been a few months since our last update. These last 4 months since being home from the hospital have been a complete whirlwind, but truly a time of complete transformation. Caleb has grown so much stronger and healthier since we brought him home in January. [...]

Yesterday, January 11th, was this amazing kids seventh birthday!!! How on earth did that happen? In addition to celebrating 7 glorious years on this planet, we are so happy to let everybody know that we are officially discharged from the hospital and home together! We’ve been home for a week now and are settling into our new normal. Caleb still has a long road of recovery ahead of him. He still is on tube feeds and a bunch of meds to help manage his symptoms, but things are slowly getting better. [...]

Hi everyone,

We wanted to post another update before the holidays. A little over two weeks ago, as we were preparing to be discharged home, Caleb started to have worsening nausea, vomiting and belly pain. He was unable to take in anything by mouth as well. The team here was hopeful that after a couple of days of belly rest and with a little time, he would bounce back, but unfortunately his symptoms have continued. [...]

The last 40 days have been a whirlwind, but we are starting to see a light at the end of this dark tunnel.  It has been a while, so apologies for the long update. [...]

It has been an insane couple of months! Caleb received his second CAR-T infusion on September 6th and overall did really well. His 28 day, post CAR-T bone marrow biopsy showed that he was back in remission, which we were so happy about! Unfortunately, about a week after that biopsy, his CD19 cells started to show some recovery and without going into all the nitty gritty details, we have hit a few speed bumps over the last week or so. But, at the end of the day, after some additional immunotherapy and another bone marrow biopsy, Caleb still looks like he is in remission thankfully, which means we are officially heading into transplant.[...]

Hi All, 

We are truly devastated to have to write this update. On Wednesday 8/9 after Caleb’s routine bloodwork, we found out that Caleb’s CAR-T treatment was starting to “wear off”.  This is not ideal, because the goal is to make it at least 1 year out from the infusion with the CAR-T working as it should.  He had only just passed the 7 month mark.  After a bone marrow biopsy this past week, we received the news that his cancer has come back.  There is technically less than 0.01% leukemia in his marrow right now, but this is unfortunately still considered a relapse. After speaking to his team of doctors on Thursday, the plan now is to re-infuse him with a second round of CAR-T in the next 2 weeks.  They will then do another bone marrow biopsy in a month to make sure that he is back in full remission, and we will then move immediately into Bone Marrow Transplant in October. The reason that they plan to re-infuse the CAR-T is that he needs to be in complete remission again to move forward with the transplant.  [...]

Hi everyone,

We wanted to post an update on Caleb since it has been a few months. We are so happy to report that we are now almost 7 months out from Caleb's CAR-T and he continues to be in remission!!! His most recent bone marrow biopsy at the end of June showed that he remains in remission with no evidence on any testing of any leukemia cells! We continue to take him monthly for bloodwork and he continues to need IVIG infusions every two months as a result of the CAR-T continuing to work in his body to patrol for leukemia, but we couldn't be more thrilled with his response to this miracle treatment! [...]

Hi everyone! In the spirit of the day to celebrate love above all else, we are so happy to share the news that Caleb is in remission!!! We have been waiting for what feels like a lifetime to post this news! Caleb had his first bone marrow biopsy after the CAR-T therapy a few weeks ago, and on both tests they do to look for any evidence of leukemia, he was negative on both of them. This was the first time that there was absolutely no evidence of leukemia in his body since his relapse in August. To say we are relieved would be a complete understatement. Of course, we are cautiously optimistic and there is still a lot of monitoring and waiting in the coming months, but for now we will take this as a win! Thank you for being our community and for lifting us up through this darkness. Sending you all so much love![...]

Hi everyone!

Mike and I have finally had a moment to reflect on the amount of love and support which has been thrown our way over the last several months. I wish I was more eloquent when it comes to putting my feelings into words, but we just continue to be so incredibly grateful to everyone who has been a part of this journey with us. Calebs concert two weeks ago, was simply one of the most incredible nights of our lives and will never be forgotten![...]