A very long day

Originally posted: December 22, 2015

We left home at 6:30 this morning. We had to be at OT by 8am. That was supposed to be an hour but radiation was scheduled for 8:45 and then PT at 9am. Then off to a whirlwind appt that lasted a couple hours in oncology. We met with pretty much everyone we possibly could in the clinic and on site I think. We were not rushed at all. We were able to ask any questions that we had(which at this point is not many as we don't really know what we even need to be asking at times. Everyone came to us which was wonderful so we did not have to go to 10 different places to meet with everyone. So well orchestrated. Even one of the 2 gals that does all of the triage phone calls ENCOURAGED us to call with any and every question that we may have. WHO DOES THAT?!
Who has time for that?!? But they did. And you could tell that she meant it. SO so cool. We got home after 4. It was a long day. The kids did so good at being patient while we talked to everyone we needed to meet with.
We spoke with someone from the trial. We have to wait and see if they will accept us into the trial before we can decide if we want to be in it. So, we wait to hear on that.
We also have no words to express how grateful we are for everyone's support, gifts whether things or monetary, and for each and every prayer. We have been so surrounded by love through this journey. We are truly overwhelmed by it all.