Quarantine Update #3
Should I share the good news first? Okay...
My most recent MRI was yesterday, and I had been doing a lot of manifesting positive results. Maybe I was being greedy because I really wanted to hear about improvement rather than stable yet again. Well, that's what we heard! And this scan, my oncologist was able to compare to the April 2020 MRI, saying that the areas that were "lit up" (or previously enhancing) were enhancing less than my scans from 4 months prior. My doctor was very excited to see this. Dan had a lot of great questions about the lasting effect of the chemo I finished in March 2020. My doctor thought that there might have been some "treatment effect" or inflammation from the radiation treatment from four years ago that was finally subsiding. She also took into consideration that I've been feeling more energetic and stronger, and felt that given the improvement, we could increase the interval between my regular scans from four months to six months. And, I have surpassed my 4 year "cancerversary"! For those of us battling cancer, we all are probably familiar with the term scanxiety. I don't think I need to explain what that means, but less frequent scans is a good thing, in that respect.
My new UW rehab physician gave me my first injections of Botox in my left arm and leg, directly into the muscle. That was weird feeling! Really! There are a few things at work with the nerves and muscles on my left side which I won't bore you with. Occasionally my knee or elbow will lock out completely straight. The theory is that Botox should prevent the muscle spasms from causing that locking out and loosen things up a bit. I think it worked for the first few days. My next injections are scheduled for late October (every 3 months). With this transition to UW rehab, I am now working with a new PT and OT. The new PT is giving me new exercises that are really challenging. That's exciting because I really feel myself getting stronger and using muscles that I haven't used in awhile-like the small muscles in my ankle and foot. I will start seeing my new OT this week.
Besides that, we've been bouncing more between Seattle and our beach house, and getting to know our Port Ludlow neighbors a little bit better, seeing them out on the street when we go for walks. We've also been doing more socially distanced dinners with friends on the weekends. Besides that, we're just trying to stay sane like the rest of the world.
Until next post, stay healthy.
And remember: Mask it or casket

Comments (37)
So glad to hear that things are stable. Thinking of you
It really sounds you are on the road to feeling better and getting your strength back. I’m sooooo happy for you. Your an incredible strong person, and I really enjoy getting these updates. I think of you often. Take care and looking to hearing more exciting updates from you.
Thanks so much Diane! I appreciate your very sweet comment. I hope you and Bob are enjoying your retirement! Take care and be well ❤️
Great news Eden! Can't wait for Covid to be over so we can resume our girl lunch dates. Miss you.
Thank Lisa! I am looking forward to resuming our girl lunches as soon as we are able! Miss all of you 💗
Hip hip (and ankle, foot) HOORAY!
This is wonderful news Eden! I am so happy to hear you are doing well and that the scans are decreasing in frequency. 4 years is a huge milestone that should definitely be celebrated!! Glad you are staying connected safely. My love to you Dan and the girls. 💜 Nicole
Thanks for keeping up on my journal entries, Nicole! I hope you’re all doing well on your end! Good luck to Chris on school . And I hope for a smooth start to school for the girls. Miss you ❤️ Can we plan a socially distanced walk one of these days?
So wonderful to hear your voice and wonderful sense of humor in your update! You continue to amaze me and inspire me. Looking forward to another socially distanced walk soon! ❤️❤️❤️❤️❤️ To you all!!
Hi Laura! Thanks for your encouraging post. I appreciate it! Yes to another walk soon! Good luck to all of you in the start of school! See you soon...
This is great to hear! Sending love from the great not yet white north
Thanks for keeping up with my journal entries and for the love from the great soon to be white north 🙄 Good luck to e erroneous with the start of school! Send our love to Jen. If you’ll be in Seattle anytime soon, let us know! Xoxoxo
This is wonderful to hear! You and you family are always in my thoughts and prayers. Will give you a call one day soon! Sending you love from the Jersey Shore! ❤️❤️❤️🙏🏻🙏🏻
Hi Dorothy! So nice to see Your post! I Hope you’re doing well and staying healthy. Yes, I’d love to catch up via phone. Give a ring whenever, my dear. My love to Michael... xoxo
Really nice to hear some good news. So happy! Can’t wait to be able to scoop you up for a girls lunch. I miss my friends.
I hear you! Nice to be able to finally share some good news! I can’t wait to be scooped up for a girls lunch. I miss you all ❤️ Good luck with the start of school... xoxo
Such wonderful news! Your mind has been working very hard to keep the positive energy flowing! We look forward to the time when we can be together again! Love marci and bob
Thank you Marci and Bob! Nice to see your post here! I hope we can all see each other in person soon. This is craziness already! I hope you both are staying sane. Xoxoxo
What an update Eden! So great to hear this! 😊
What an update! It felt great to write it! I hope you’re all doing well and I look forward to seeing you at our next girls lunch. Xoxo
You crack me up! I love love love this post, Eden. Fred and I are so happy to hear this news - thanks for sharing it with us and making our day. ❤️
Oh Noa! You made my day to hear that I made your day! I am so happy to be cared about so much by you and Fred and my beloved friends. I feel like I can conquer the world. Okay now I’m getting out of control... We miss you guys. Xoxoxo
What a great update! Sending you all good thoughts and wishes!
I’m thrilled to spread some good news in these unprecedentedly shitty times! Am I going to have to wait for another trip to Home Depot to see you again? Lets get a socially distanced walk on the calendar soon. Hope the start of school goes well for everyone... xoxo
So happy reading this wonderful update! Good luck with all of the therapies -
Thanks Valerie! Be well and stay healthy...
Great news! Thinking of you! Xo
Awww thanks Rachel! I miss you guys and look forward to a get together when this craziness is past us. I hope work is going well. Send my love to everyone at work. Xoxoxo
Thanks for the update Eden! Thinking of you often from here in Louisiana. Stay safe and enjoy Port Ludlow.
Hi Cindy! I hope the move went well and that you’re all settled in! Enjoy your new home. Send our love to Bruce and hope the girls are doing well. Let us know if you have any plans for a trip back to Seattle. We’d love to see you ❤️
Reading this made me smile - so happy to hear your good news. Cheers to getting stronger everyday!
Hey!!! I’d like to send more smiles in my future journal entries! I hope you’re doing well and up to fun things during this crazy time. I miss you and would love to get together for a socially distanced walk sometime soon.
Thank you for this huge smile on my face! So much encouraging news here. I'm thrilled to know that you're feeling stronger and more energetic. I hope we get out for a walk together next time you're in Seattle. Lots of love to you, Dan, and the kids. Take good care! xoxo
Thanks for your post. I feel really good mentally and physically and will let you know when we have a Seattle trip planned. And we think about you and Kenn all the time. I’ll text you soon my dear ❤️
Fantastic move to the 6 month scans! YAY! You know, the quiet sort of post where there is steadiness and ability to do and enjoy exercises is my cuppa tea. You have done so well, I am amazed. Love to you and the family, LOTS OF IT! XOXOXOXO! --> Mimi
Awww thanks Mimi! I’m happy to not have to go into radiology as often. Positivity-just trying to stay in that zone 😃 Sending love to you all...
Thanks Rumi! I miss you and hope you’re doing well!