The Good, The Bad, and the Ugly.
Sorry for the delay in updating. It's been a while for me to be able to figure out the words to explain what is happening.
The good news is that we arrived safely in SLC and are beginning to settle in. The the even better good news is that Eric is eligible for the clinical trial and has been accepted into the clinical trial.
The bad news is that he has been randomized (truly the luck, or bad luck, of the button on the computer) into the control arm which means that he will not be getting any of the experimental options and will only be getting the standard of care. He started radiation and chemo on Tuesday.
Now for the ugly....the past couple of days were not great for Eric, but this morning everything hit hard us at the same time. He woke up with a severe headache and lots of vomiting. These symptoms are not expected with his particular type of chemo, so I called his oncology team who instructed us to head to Acute Care to get Eric medical attention. After lots of evaluations, bloodwork, coordination of care, and medication, they were able to get Eric's symptoms under control and allow us to return to the place we are staying.
So, the remaining good news is that Eric is stable.
I can not articulate how much I appreciate the Oncology team at Hunstman Cancer Institute and the Neurosurgery team at University of Utah. Everyone has been professional, kind, caring, and has taken extra time today to make sure that Eric got what he needed. They have kept in touch with us throughout the day, even after normal office hours, and continue to take great care of both of us.
So despite a pretty hectic day, we are going to bed early to get some extra rest, and we are going to bed extra grateful for the care we are receiving.
Comments (25)
Thank you for the update, praying for you both.
Love you 2. So glad Eric was able to get some relief. He couldn't have asked for a better human to guide him through and advocate for him. You're amazing, J.
Oh friends, thinking of you both. Lots of love from us and please ask for help, especially on these shitty days.
Thank you for the update - I think about you guys all the time. Hectic rides suck, but I'm glad Eric is stable. Rest well.
I’m bummed to hear about his rough day😢also that he ended up in control group. Maybe if the drug works well they will move him into treatment . Thinking of you both!
Thinking of you both, often, sending support. Thank you for this information. Becky and Paul
Thank you for the update! “Sorry” doesn’t seem like the right word to express how we feel about the situation. We are so incredibly inspired at the strength you have, but not surprised.....you’ve always been strong. Keep the updates coming, and know that webare sending lots of positive thoughts, prayers, and love from afar- Brian and Alicia Knau
I was thinking and praying for you both today. Thank you for the update. I will continue praying for you both. Love and hugs 💞
Oh lord, our family thinks and prays for you. This was a tough post to read but you guys have a great attitude. Stay strong and know we are thinking of you.
Sorry to hear of this very rough day for you both. I’m praying right now for strength for both of you, wisdom for Eric’s care team, peaceful rest for this evening, and healing for Eric. Love to you both from Colorado. 🙏🏻🥰💕
Keeping you all in my prayers.
You have been on my mind and in my heart. Praying for you!
We are praying for both of you! Annette and Steve
I’m glad you are back at your “new” home...sending prayers to add to the many you have coming your way.
I'm glad you have a good team helping you through this. Continued prayers and positive thoughts for healing.
I am sorry for the ugly day! Kick cancers ass Eric, you’ve got this!!
Love you both. You are in my thoughts and prayers every day.
Stay strong!!! Both of you deserve nothing but the best for treatment and support right now. Praying and loving you from afar!
Sending lots of love, hope, and optimism your way. I can only imagine how challenging all of this continues to be. Continue to lean on any shoulder that comes your way! Especially when all you want to do is curl up in the fetal position and seclude.
Holding you both up in prayer!
Somethings are just not fair. You both deserve better. Hope better is coming.
Thank you for the update, Johnanna. Prayers and hugs from Helena to you both
Thinking of you both. Prayers for a peaceful weekend.
Thanks for the updates, which I imagine are not always easy to write. I have been thinking of you. Nice cap! John Rowley and I got out for a bit of a hike on the CDT a couple of days ago, and talked about how we miss Eric and hope to see him soon.
Love you so so so so so so so so much! I declare in the essence of all things powerful and holy that Eric's body is undergoing restoration to perfect health. He is perfect, whole, and complete. Fuck cancer! Offering praise and gratitude for modern medicine. Thank you for the update J. You both are in my constant prayers.