in partnership with Patient Caregiver Info

Posted 2022-12-05T03:56:18Z

Challenging Few Weeks

It has been a particularly challenging few weeks for Eric and we felt like it was time for a Post Hope update.

This disease is mean and has taken a toll recently. Eric's mobility has decreased dramatically and he has lost much of the function of his right arm and leg. His vision also continues to be impacted.  As you can imagine, this makes walking, typing, eating ... challenging. In true Eric style, he has reluctantly accepted the help of a walker and occasionally the wheel chair. Occasional in home help, and a steady rotation of family members, are there to ease the load. But this change has been a lot to carry for both Eric and Johnanna.

Eric's humor is sharp and dry and he is taking this dramatic change of his health in stride. However, a quick text, a phone call, a card, dropping off a frozen meal, or really any gesture that would cause them to laugh would be helpful.

I got to visit Eric and J over Thanksgiving week. We cooked a lot, laughed about past misadventures, and Eric even humored me by doing some drawings with his left hand. My sister, Julie, is currently in Helena and has busted out all the Christmas decorations. Next comes my older brother Doug and then Dad will come to lend a hand.

We are grateful for all of the amazing people in Eric and J's lives. When things get real you people show up - thank you.

- Emily (Eric's sister)

 

Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted

Comments (7)

  • Brian Winkel
    Brian Winkel

    Thank you for sharing news of family being there. We think about Eric often.

    3 years ago · Reply
  • Becky Piske
    Becky Piske

    Thank you for this news. Grateful to hear about Eric and Johnanna. OK, food deliver. Thank you. BnP

    3 years ago · Reply
  • Kristi Barker
    Kristi Barker

    Praying for you all!

    3 years ago · Reply
  • Leanne Meeter
    Leanne Meeter

    Thinking of and praying for you! And safe travels!

    3 years ago · Reply
  • Nancy Wright
    Nancy Wright

    Thank you for the update. All of you are in my prayers. ❤️

    3 years ago · Reply
  • Jessica Larson
    Jessica Larson

    We were just talking about Eric yesterday and wanting an update. Thank you for sharing.

    3 years ago · Reply
  • Kathryn Marie Ciano-McGee
    Kathryn Marie Ciano-McGee

    Thank you for the update, Eric and our J are always in our hearts and prayers!

    3 years ago · Reply