in partnership with Patient Caregiver Info

Posted 2022-12-12T15:15:43Z

20 Months and the Mountains

Time is passing too quickly, and I probably keep putting off an update from my trip because it's hard to put all my feelings into words. 

It was wonderful being able to spend a week with Eric and J! I was grateful that I could be there and be helpful...not just in the way and annoying. But, let's be honest, I'm Eric's littlest sister; of course, I was annoying (and bossy). Yet, Eric's disease continues to progress. As Emily said, this disease is mean and slowly stripping Eric of many physical abilities. Texting, reading, video chats, and long conversations with friends continue to prove challenging even on his best days. However, Eric is still hilarious, generous, and incredibly kind. 

I had the great privilege of meeting four of Eric's amazing colleagues and friends while in town. These people are pretty awesome in their own right, but their willingness to show up for Eric and J also reminds me of the caliber of people with whom Eric surrounds himself. Eric and all of us greatly appreciate your coffee chats, dog walking, burrito making, adventure-telling, and all-around amazingness! 

With very little fanfare, we all acknowledged the passing of the 20-month mark. Instead, Eric and I took a long drive into the mountains. What started as a slightly snowy drive to see the reservoirs in town and marvel at the ice fishermen turned into two quiet and beautiful hours driving in the mountains. I must admit that snowy mountain driving isn't my strong suit, but it was wonderful to follow the tracks right down the middle of some beautiful mountain roads stopping for deer, a turkey, and several cattle guards. We drove until there were literally no more tracks to follow. That's when this city girl said it was time to turn around. But, before we could make it home, Eric and I both accomplished a much need nature pee, laughing at ourselves for how ridiculous we would look should anyone stumble upon us. 

The rest of our week was filled with cooking, baking, arts and crafts, storytelling, and lots of Christmas decorating. (If anyone knows how to store a fully decorated tree, we're open to suggestions) 

So now, it's Doug's turn to invade Eric's house. There may be less cooking and more home repairs this week, but we all have our strengths. 

 

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Comments (11)

  • Leigh Hutchinson
    Leigh Hutchinson

    Thank you for this beautiful and fun description of how to love.

    3 years ago · Reply
  • Nancy Wright
    Nancy Wright

    Thank you so much for the update and for being there for Eric and J. I think of them every day. ❤️🙏

    3 years ago · Reply
  • Carmella Renda
    Carmella Renda

    Thanks for the update . Eric and all his family are in my prayers💕🙏🏼

    3 years ago · Reply
  • Ashley Orellana
    Ashley Orellana

    Thank you for the update. I love all of you!

    3 years ago · Reply
  • Kristi Barker
    Kristi Barker

    I’m happy you all have been able spend special time together.

    3 years ago · Reply
  • Kraig Brownell
    Kraig Brownell

    So wonderful to read about all of the love being shared during a continuously relentless battle against an Insidious disease. Thank you for allowing the rest of us to travel this journey with you.

    3 years ago · Reply
  • Pam Severson
    Pam Severson

    Julie, I read all your entries and marvel at your strength, love and resolve in making Eric and J's days full of laughter and sometimes tears. But always love. Eric and your whole family is in our daily prayers. A reminder that we all should be grateful for each and every day that we live. Pam Severson

    3 years ago · Reply
  • Laura Beauregard
    Laura Beauregard

    Thanks fir the updates and an Amazing glimpse into his Life for those of us not living near him.

    3 years ago · Reply
  • Janet Potts
    Janet Potts

    Julie, You and your siblings continue to amaze and inspire me for your immense love and strength. Team Sullivan rocks.

    3 years ago · Reply
  • Matt Locher
    Matt Locher

    Eric and J and Sullivan clan - I think about you all the time and I'm in awe of your courage and love. You are a prime example of how to live and share a life.

    3 years ago · Reply
  • Stephanie Berns
    Stephanie Berns

    Sending love, peace, strength, hugs and prayers to Eric, Johnanna and your families. Eric and Johnanna are two of the most caring and generous people I know. I am so sorry to see this disease attack Eric. It just sucks. Love to you all. 💕

    3 years ago · Reply