From Jerome: This morning, I was excited to finally begin my chemo treatment. My dad was kind enough to pick me up and dropped me off at SCCA by 7am. They tapped into my port with a rather large gauge needle (quite painful), drew my blood, and left it in for the chemotherapy.
Afterwards, I then went upstairs and around 8:30 saw the nurse who went over my blood test results. She noticed that my orders were not in the folder so she went to go grab them. While she was away, the scheduler came into the room to say that insurance has not provided the pre-authorization for the chemo and that we would need to reschedule the chemotherapy to another day. They mentioned there was an option to pay out of pocket for the drugs which they said was around $10k, but they said that insurance may not pay for this or future treatments since we did not obtain the pre-authorization beforehand. Obviously I wanted to wait for the authorization.
As you can imagine, this was quite disappointing, as I had been mentally prepared and was excited to start killing the cancer cells, only to be interrupted by something that was outside my control.
The scheduler said that it could take another 3-5 days before I would be able to have the infusion, so I called Premera and they mentioned that they haven't even received the orders from the doctor or SCCA. I then gave Premera the phone numbers I had to contact SCCA to get it started, and they called while I was on hold. Premera has been very supportive and responsive, but it seems the doctors are dropping the ball.
After I got off the phone with Premera, I went back up to talk to the scheduler and mentioned that Premera mentioned they didn't even receive the orders was ready to process the request. I asked her what happened, and she just mentioned that "they dropped the ball" and that they need to re-examine their processes. I then had to wait again to have the port needle removed, and Sam picked me up.
So here we are, an hour and a half after I was supposed to start treatment, at home waiting to hear when the chemo will actually begin. I just got off the phone with SCCA who said they submitted the orders this morning, and I called Premera afterwards just to make sure, and Premera mentioned they still haven't received anything. How frustrating.
More to come once we learn more!