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Posted 2014-04-28T03:18:04Z

These Side Effects Are No Joke (Infusion 1 of 12)

After my first infusion on Wednesday, the doctor called on Thursday to follow-up on how I was doing.  I told him that I felt better than I did before I started chemo, because I truly did feel great, as there were no adverse side effects hitting me yet, and I was ignorantly thinking that this feeling of overall wellness was going to continue.  

Two days later, on Saturday, I was served a large piece of humble pie.  Not that there was any particular incident that supports this point, but yesterday I just felt like a complete mess.  Let's discuss each of the side-effects individually:

Fatigue: I woke up with that feeling you get when you have a fever and you don't have any energy or motivation to do anything.  That lasted the entire day, and persisted through a party that I was having a blast at and was really enjoying.  I took (several!) naps, but they didn't seem to alleviate the tiredness.  The fatigue also means that I shouldn't carry Caleb as much, especially with my meds causing some level of drowsiness.  Sad panda.

Nausea: It was like a pit in your stomach that just makes it so you can't quite get comfortable.  Luckily, I didn't vomit, but the uneasiness is not a good feeling.  Unfortunately, I anticipate this one will get worse over time.

Cold-Sensitivity: The doctors warned me about this one, but it didn't hit as strongly as they said it would.  They said don't open the fridge and inhale, as it would be like you're dunked into frozen water and you're struggling to breathe, not that my throat would be blocked, but the sensation of cold would be a shock to the body.  Same thing with cold water, anything from the fridge, and cold air in general.  You may find me wearing tons of sweaters and thick layers in the summer, as this creates a general difficulty of feeling warm.

Sensitivity In Feet: This one is just starting, but my heels seem much more sensitive than before.

Sensitivity to Sunlight: One of the side-effects that I wasn't expecting, but was mentioned on some of the anti-nausea meds was sensitivity to sunlight.  I noticed that the sun did seem brighter the last couple days, so if you see me wearing sunglasses at night, don't think I'm being a DB (unless I am).

Misc Stomach Problems: I won't go into too much detail in this one, but I didn't realize it was possible to be both backed up and having to go frequently until now.  Definitely the worst side effect because of the stomach cramping so far.

I think that about summarizes the side effects so far.  I understand that the effects are cumulative, so I anticipate in the future that I'll be describing similar symptoms as above in a more intense light.  Luckily, today was much better than yesterday in almost all areas, so as time goes on, I'll start to understand the cycle of side effect intensity relative to the infusion date, and can better manage with more thoughtful doses of suggested, more targeted medicine.

With all that said about the side effects, I'm glad to have started the regime and I understand that these are a small price to pay for a longer and more fruitful life.  I'm still looking forward to my next infusion, to get another kick on the cancer.

As these side effects become more present, I continue to thank and recognize Sam for not only putting up with me, but for taking wonderful care of Caleb.  You are truly a super mom, a wonderful wife, and I know you're the biggest blessing given to me during these difficult times.  I Love you, Sam, and love you all!  

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Comments (9)

  • Roger Wheeling
    Roger Wheeling

    We love you too, Jerome, God bless you!

    12 years ago · Reply
  • Yolanda Jimenez
    Yolanda Jimenez

    Dear Jerome, I was quite worried and bothered when I saw you yesterday. I can sense how uncomfortable you were but you tried hard to stay up beat while we visited with Gary and Frochie. I wish I could take away those nasty side effects. Thank God you felt better today! Stay positive and always trust and thank our Heavenly Father for your healing. Remember we are all here for you. You have a lot of family and friends supporting and praying for you. And Thanks a lot Sam for all you do for Jerome and Caleb! Love you forever Jerome, Sam and Caleb! Mom

    12 years ago · Reply
  • Samantha Jimenez
    Samantha Jimenez

    I love you more and more everyday...in sickness and in health, just like I promised :)

    12 years ago · Reply
  • Jennifer Bishop
    Jennifer Bishop

    ^^^ Sam, your comment made me cry. May God continue to shine on your beautiful love for each other.

    12 years ago · Reply
  • Aaron Suoja
    Aaron Suoja

    Hang in there. Just think of what it is doing to those cancer cells. Jose's mom had side effects as well but she got through them.

    12 years ago · Reply
  • Albert jimenez
    Albert jimenez

    Jerome I admire your courage. You are an inspiration to me . Stay strong and positive. We are all here for your support and prayers. We love you and your family' very much. Thanks for the updates.

    12 years ago · Reply
  • Dawn Liburd
    Dawn Liburd

    Team IA continues to be in your corner Jerome and we continue to keep you and your family in our thoughts and prayers! Everyone sends their best!

    12 years ago · Reply
  • Marilee Byers
    Marilee Byers

    I'm glad you're on the path now. Like you said, every treatment is a blow to the cancer!

    12 years ago · Reply
  • Kimberly Yamanaka
    Kimberly Yamanaka

    Jerome, I've been journeying with you during the night while up feeding Luke. Your stories snuck up me emotionally as I was/am hugely impacted by them but really felt the effect when I talked with Bryan in the morning and just broke down about it. I'm really grateful you are using this site. Thank you for all the work you are putting into it. We are doing or giving up something daily to God in an offering for you and are praying for you daily. And we are just SO inspired by your motivation and spirit. We are looking forward to giving you and Sam a hand and are really looking forward to seeing you both and Caleb soon. Much love, Kimberly and Bryan

    12 years ago · Reply