Next Monday will mark the 4 week/one month date that my doctor said I will live to. Although the last few weeks have not gone by without incident, I'd like to share how things are going with the fight!
Stomach Troubles OMG: Since the start of hospice over three weeks ago, I've had a really bad stomach. In the interest of continued full disclosure, overshare time, but we're talking urgent movements where I would need to run to the restroom. This would keep me up for many nights and prevent me from eating during the day or leaving the house. My hospice team was as puzzled as I was, thought it may be a blockage, but we never checked or got an x-ray because my doctor didn't think it was. I was worried this was a side effect of my failing liver.
Last Friday after I had 12 movements from 5pm to 5am and woke up with cramps in my stomach I said it was enough and went to the ER. We did an X-ray and CT scan and didn't find a blockage, and did do a stool culture. The sample showed that I had a bad bug this whole time and prescribed me antibiotics to fight it (was it the Jamba Juice I had a few weeks ago?). I'm currently taking the antibiotics, and hopefully that will end this inconvenience, as I'm still not at 100% with the stomach.
Cold and Sinus Infection: My first week of hospice I had also caught a cold and sinus infection, giving me a pretty bad cough. There were a few days I would cough up blood, but luckily I think the cold has passed. With as many colds are going around now, and I'm trying to be careful, but Caleb is now fighting a bad cold this week so I can't even get close to my son =(.
Energy: My energy seems to be about the same, but there are times where I'll feel exhausted and need to take a break or sit down. I am now taking sleeping pills at night so hopefully that will help me get some good rest for the day.
Shortness of Breath: This one concerns me the most at this point, but my shortness of breath has gotten progressively worse the last couple days, and I've found that I'm needing my oxygen more and more, even with little activity. I'm even wheezing more when not under exertion, but hopefully this too will pass and get better.
Mentally: I'm still good! I'm still positive and so grateful that I'm feeling well enough to enjoy this time, despite the timelines given by the doctors. We're enjoying many visitors and gatherings, and I feel like I've never been closer to my family and friends. I'll continue to update on any changes to my condition for as long as I'm able to physically and mentally.
Lastly, as I mentioned, I'm so happy to even be alive especially today because today we celebrate my wife Samantha's birthday! Happy birthday! We took professional pictures earlier this week with the amazing NickLeungPhotography.com and I'd like to share a few of those here. For more, check out the album!
Thanks for reading, and keep sending those thoughts, energy, prayers, and vibes and let's see if I can make it to Thanksgiving! I love you all!