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Jedidiah Haas - Journal

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Posted 2017-04-12T22:49:26Z

Home & New Limitations

After 15 days in the hospital Jed finally came home last Thursday!
I Wish we could say that he is up and running around like always after being “locked up”, however this time that is not the case. Mentally, Jed wants to jump back into life full force, so the reality that he can’t physically has been difficult to accept. His lung function has not increased after a 2 week IV treatment. He does feel better than when he first went into the hospital so that is good. At this point we are trying to keep him as healthy as possible and fight off continued infection flare ups. With a double lung transplant you have to be sick enough to need it but healthy enough to receive it. We were informed that the first 48 hours Jed was in the hospital this time he would have been considered too sick for transplant if the opportunity had come. This was a huge wake up call.[...]

Posted 2017-04-05T20:21:00Z

Waiting...

Who likes waiting? I have had to wait patiently for many things in life, yet still I am learning to trust in this season of waiting. We were told by the Transplant Coordinator that this is often the hardest time for people. Waiting for the call, waiting for the right match, waiting to get off the antibiotics, waiting to be released from hospital, waiting to see if the transplant will work.[...]

Posted 2017-04-05T03:26:42Z

Back in the Hospital

March 23, unfortunately after the dry run, birthday parties, and spring break Jed had a "flare up" and ended back in the hospital at UW. We were hopeful that he could have only a few day stay with going home on antibiotics. However, since two of the antibiotics that are being used he is allergic to so they have to monitor him and he was needing additional breathing support through C-Pap at night the Doctors decided he needed to stay in the hospital for the full 14 day treatment. Day 2 in the hospital his lung function was at 16%, praying the treatments help the numbers to go back up and for healing.[...]

Posted 2017-04-05T03:25:00Z

Dry Run

March 16, 2017 at 3:21, we got the call that there was a potential donor lung for Jed.

Mentally we knew this call could come at anytime, yet the thoughts and emotions were still over whelming. There is a short time frame that is given to get to the hospital to start being prepped, so grabbing our bags and jumping in the car was a bit of a whirlwind.[...]