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Posted 2018-09-19T22:15:07Z

The results and the plan

Hi team,

It's been a little over a month since my lung surgery and I'm sorry for not filling you in sooner. Surgery itself went well and I was able to come home after just a few days in the hospital. The recovery has been a long and painful one, which they warned me about. I'm still in a bit of discomfort and can't really lift my left arm but more than anything I'm tired. So, so tired. Again, I was told this would be a significant side effect but man oh man, they were not joking.

As far as the results go, we were told what we expected to hear based on the pre-op appointments. 2 of the 3 nodules removed from my left lung are indeed metastatic osteosarcoma. The good news is that they were contained and have not spread to the surrounding lymph nodes, which were also biopsied. At this point in time, surgery is the solution. No chemo. If it comes back in the lungs then that plan will change, but I am trying to not entertain that and to just do my best to be positive and take care of myself. 

My doctors have been discussing the facial reconstruction (which was supposed to be happening right about now) and the consensus is that if I have a clean scan 3 months out from surgery (which will be early November) then they feel comfortable moving forward with the first stage of the recon. It is approximately a two year process so they will continue to scan me every 12 weeks and hopefully we won't run into any more issues. 

My spirits are pretty good, I think. Up and down. It's a weird experience to go through this cancer thing once, not to mention three times. Last week an acquaintance passed away from ovarian cancer and I just felt kind of punched in the gut by the news. She is the sixth person in my orbit to pass from cancer in the last 2 1/2 years (three of whom were diagnosed AFTER me) so it's difficult for me to wrap my head around making it through a third diagnosis. It's complicated. There must be a reason. I'll let you know when I find out what that is.

Love and thanks to all for the thoughts and prayers, flowers and books, visits and texts, fundraising contributions and, most of all, thanks for all the love. I continue to be astounded by your generosity.

xx

K

 

 

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Comments (15)

  • Jennifer Urbonas
    Jennifer Urbonas

    Katie You continue to impress and remind me to remain positive and take each day one at a time. I feel blessed to know you and to read your posts along your challenging journey. I wish you continued love and success as you beat cancer once again. Jen

    8 years ago · Reply
  • Ari Pomerantz
    Ari Pomerantz

    We’re in awe of your strength and grace! Sending so much love, Ari Sarah, Sadie and Mischa

    8 years ago · Reply
  • Kirsten Murphy
    Kirsten Murphy

    Forever and always sending strength and positivity to you from CO! We love you so much!!! Infinite Xs and Os my friend, you are a warrior!!

    8 years ago · Reply
  • Joyce Carper
    Joyce Carper

    I have been thinking about you and hoping all went well. I will continue to send healing thoughts and prayers. You are an inspiration.

    8 years ago · Reply
  • Julie Ciciarelli
    Julie Ciciarelli

    Kaytie O! We love you so much and just want to give you a big hug. Stay positive, stay strong, and know our thoughts are always with you. Love you lady!

    8 years ago · Reply
  • Susan Hopkins
    Susan Hopkins

    Kaytie.... there are just no words that are good enough. There just aren't. Sending you hugs and love, light and healing energy. Love you, Kaytie girl........ Susan xoxoxo

    8 years ago · Reply
  • Mary Helen Hutchison
    Mary Helen Hutchison

    Positive thoughts always coming your way🌹love you.

    8 years ago · Reply
  • Karen Bono
    Karen Bono

    Kaytie, Hoping your energy level will improve! Keeping you forever in my heart and prayers! Stay strong! 💕 Love you, Karen

    8 years ago · Reply
  • Bonnie Forman-Franco
    Bonnie Forman-Franco

    Kaytie you are one helluva person!! I speak volumes to you"in silence". Love ya girl. As difficult as it is, work on keeping up your wonderful spirits. You are an inspiration to us all, and we all will help hold you up. xoxoxoxox

    8 years ago · Reply
  • Walker Jones
    Walker Jones

    Hi Kaytie, I am in one of my beloved spiritual “power spots” , an ashram in the Catskill Mountains of upstate NY. You are at the forefront of my thoughts and prayers. “Full on” blessings. ❤️ -Walker

    8 years ago · Reply
  • Paula harris
    Paula harris

    I love you and really miss your presence in my life. I wish for you all of the healing and none of the pain and all of whatever it takes to get through this. You are a survivor that much is undisputed( is that a word?) I just want life to be chilled out and easier for you. For you deserve that my dear. I wish I had a magic spell to make it all go away. I wish all the unicorn blessings in the world for you, dear Katie, my heart is 💯 is your corner.

    8 years ago · Reply
  • Marianne Ferguson
    Marianne Ferguson

    Prayers and positive thoughts continue! God bless you ♥️🙏

    8 years ago · Reply
  • Bob and Sue Ames
    Bob and Sue Ames

    Immediately after first meeting you at Omega I knew I was in the presence of an amazing person. Thanks for the update. I keep you close to my heart. Love, Bob (& Sue)

    8 years ago · Reply
  • Jennifer Reynolds Clark
    Jennifer Reynolds Clark

    Kaytie, you are such an amazing fierce warrior. I can’t even imagine how incredibly exhausting it must be. You continue to inspire me. I pray for strength, a release from pain, peace and joy to surround you. Much love. ❤️❤️

    8 years ago · Reply
  • Layne Hackett
    Layne Hackett

    Kaytie, I am stunned by the hurdles that have been placed along your path of life. I am amazed by your determination, courage, and resilience in meeting them head-on. I am humbled by you! Love and blessings to you, Layne

    8 years ago · Reply