Good Days and Not so Good Days R3 D 3&4
Yesterday was a really good day for Mike. His friends, Kelli and Shannon, came to visit. They were such a breath of fresh air. We ordered lunch and laughed until late in the afternoon. They were barely out the door, and Mike smiled so big and said, "That was GREAT!" He is so lucky to have friendships from his childhood still going strong after a (few) years! :)
We watched the KU game after they left, but it wasn't too exciting considering they won with a final score of 105-79.
I went home to sleep last night, and man, was that strange to go home to an empty house. The kids are at Mom's house, so it was just the dog waiting up for me. The thing that was even more strange was that I got woke up by Milo instead of kids, Mike, or an alarm. I had to bring some brownies up the school for a fish fry fundraiser tonight, then I headed back down to KC.
Today hasn't been the best of days. When I got here, I could tell Mike was having a pretty rough day. Some days are just emotional. I know it's so hard for him to be stuck in here, but the worst part is that the boredom gets in his head. He was feeling pretty blue, and it was breaking my heart to see him like that. We finally decided we were done with all of the sadness today, so we walked a little over a mile through the halls. At least this week he has a quiet IV Pole!
Around lunch time a nurse, Megan, came in and introduced herself. Her husband is a Burkitt's Lymphoma Survivor, and she shared their story. He was 27 when he was diagnosed in 2011, and they had 2 really young children as well. It was so great to talk to her. I could relate to her on so many levels. We all had tears in our eyes as we talked about the things that are hard, the things that are easy, the things that help, and the things that don't. She gave Mike the boost he was needing and filled us with hope. When she hugged me, she reassured me that we will make it through this. It was really nice to talk to someone who has been in my shoes and understood all of the feelings I struggle with. I didn't want her to leave, at least not for the next 3 months. That wouldn't be too much to ask, right?
The other bright spot has been Mike's nurse, Amber. She was here yesterday and today, and we're trying to talk her into picking up a shift on Sunday. She has been really great. She is willing to sit in the chair and just chat with Mike. And let's face it, all he really wants and needs is someone to laugh at his jokes. And hook up his chemo in a timely fashion. :)
We are still on course to get finished up Sunday. It's only 2 days away, but it can't come soon enough.
XoXo
Robin

Comments (1)
Hugs to you both!! It's means so much to share a story that a patient can relate to!! Give Mike a big hug for us!! The kids are doing fine and are always asking about you two!! See you tomorrow! Strength, Courage and Hope...Love Mom!!