Try, Try Again |6-9-16|
You know how our bracelets read, "Never Ever Give Up"?
We won't.
Mike had his PET/CT scan today to see if the ICE chemo has been working. The goal was for it to have decreased the remaining lymphoma to a small amount, allowing for him to receive one more round, and then a stem cell transplant.
I'm pretty sure I've mentioned before that plans just never seem to go like they should for us.
Dr. Sirridge called when we were about halfway home with the somewhat discouraging, but not surprising (to us) news that the chemo didn't work like we had hoped. He told us we still have options though, so we are running in that race again.
When Mike got off the phone we were talking about all of it and he said he knew that was going to be the results. He felt it all week. As hard as he tried to stay positive (AND HE WAS!) he just felt off. He has been so tired. (His hemoglobin has been low) and he said he felt like he did before they diagnosed him. (oh, great.)
He asked me if I thought the ICE was going to have worked. I told him I had certainly hoped it was going to work, but that, no, I wasn't surprised. I'm sure it was because I wasn't about to be blindsided like I was the last time though. That crushed me. It crushed him. We knew we couldn't feel like that again, so maybe that's why we were being more cautious this time.
So what's the game plan now? Good question. We have a couple doctor appointments, as well as a CT scan tomorrow afternoon. They are talking about doing another biopsy and then deciding where to go. There is another type of chemo they have discussed, as well as possibly adding radiation to the mix at some point.
We just need that right hit to get us home. Get him to transplant. I never thought I'd be hoping so hard for him to get well enough just to get put through the hell that is having a stem cell transplant. But that's what I'm sitting here dreaming of tonight.
We will keep trying. I included some pictures from this past week. He did have a couple good hours over the course of several days. We are all so ready for him to get to enjoy life with us again. So.Ready.
Game On....or maybe it's the same game & we're in extra innings now...
xoxo
Robin
Comments (8)
You have a very large community of support praying for your family and sticking behind you. Lean when you need to, whether you want to or not. Call, text, drive....whatever it takes, use us when you need us! Love & hugs!
Never ever give up! That's right sweetie! You are stronger because of this, your family tighter and all backed with prayer! Extra inning prayers!
Robin and Mike- We are sending our support and prayers. Have faith in those other options. Good news may be just around the corner. Jess
Continued prayers headed your way!! Hang in there!! Stay strong!
I'm sorry that the chemo didn't work like you were praying it would. My daughter has been in treatment for lymphoma for 18 months, in remission, but lots of these terms are familiar to me. Praying that you guys have a game plan soon. There are more and more options all the time. A neighbor of mine in Shawnee had lymphoma that relapsed again after stem cell and she then did a clinical trial at mayo and has been in remission for 16 months. There is hope! Many prayers, it doesn't affect just one person but the entire family. Ps. One of my best friends is Kathryn Long, she is originally from at atchison and grew up with mike. Hugs. -brenda
What strong people you are!!!!!! Mike is so strong to be able to handle all of this, and you as well Robin. Praying for good days ahead, and your lives will get back to normal real soon. Hugs and more hugs.
Prayers, Prayers, Prayers - we'll keep them coming. You guys have been on my mind alot this week, stay strong, and as Nat would say "Keep on Swingin'". Love to you all!
Thinking of you guys robin!!! Hang in there. -hugs