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Posted 2016-08-08T16:04:00Z

A Day Closer |8-8-16|

Mike had chemo on Friday, and everything went well. It went better than well, actually. It was the best day of treatment that he's had. A friend from Mike's childhood, Mick Remondino was in town and came to visit for a few hours. He and Mike hadn't seen each other in almost 20 years, so it was great for them to catch up. Mike had told me about all of the fun times the two of them had shared as kids, so it was fun for me to finally meet him.

Also on Friday, Dr. Ganguly gave us the game plan for the next couple weeks. As long as everything goes well, and as planned, Mike will be admitted next Tuesday, the 16th, and begin radiation on the 17th. We should be finding out in the next day or so if the hospital near Bachelor #2 is able to do his stem cell collection on the dates we need. If they are, then that end of things is in place. The other piece of the puzzle is the results from the tests that he will have tomorrow. He gets a PET scan, a chest xray, a panorex of his jaw and teeth, an echo, an ekg, and labs. They want to make sure that he is as healthy as possible before they completely wipe him out with radiation and chemo next week.

Last Tuesday was the transplant education class. I told Mike when we left that I don't know how everyone stayed in that room and listened to it. I wanted to get up and run. It was a lot of information. This is a big deal, and at times I don't know how we're going to do it. We were the youngest ones in there, and the only ones with small children. I was envious of the people who only had to worry about themselves. I know I've said it before, but it's the juggling of schedules, and wanting to be with the kids, but also with Mike that is so stressful and emotional for me. Mike's first day of radiation is also Molly's first day of Kindergarten. How can I be in 2 places at once? Mike wants me to be there for Molly, though, and so I will, but I will be feeling like I'm failing him as a wife at the same time. I hate the idea of not being with the kids very much during these next 3-4 months. I hate that I will always be feeling like I'm letting someone down. I'm scared of how this time apart is going to affect our family. I am also grateful. I'm grateful for Mike's parents and my parents for being able to take the incredibly important job of caring for, and loving our kiddos. I'm grateful that we have friends that  I can call when I need someone to help. I'm grateful for Mike's friends who have volunteered to take the caregiver education class, so they can give me a break and spend time with him. I'm grateful for everyone who has helped us this far, and will continue to lift us up in these coming months.

This morning I asked Mike what are the main things we need to accomplish in this last week. It feels so surreal planning for him to leave. My heart breaks for all of the courageous military families out there. I can't even imagine what it feels like to send your husband, wife, father, or child off for months, or even years. I'm still going to get to be with Mike, but I feel like he's leaving our family and it hurts my heart. The silver lining is that he is going to get to come home to live the future that he wasn't going to be given, if it weren't for this transplant. That is what is going to get us through. Mike has plans for next summer, for our family, and we're going to keep our eye on the prize. 3.5 months really isn't that long in the grand scheme of life, but it will feel like it from time to time. It will feel like it when I am desperately missing the hugs and smothering kisses from the 3 children that we've brought into this world. They're the reason we're fighting, anyways. So we can get smothered in more hugs and kisses for the rest of the years.

I better go get to living and enjoying them. The week is going to go fast, and before we know it, it will be Christmas and Mike will be home again. Eye on the Prize.

xoxo

Robin

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Comments (7)

  • Jerri Freed
    Jerri Freed

    Continuing prayers

    9 years ago · Reply
  • Rose Bernasek
    Rose Bernasek

    And ........... you need to take care of YOU! If you get down or sick, you'll not be a position to help anyone. Don't forget about YOU! BREATHE ROBIN! :) You and Mike have got this! Take one day at a time and do the best you can every day. You've got a huge support system; don't hesitate to lean on your friends and family. That's what family is. That's how God wants us to serve each other. You'll have plenty of time in the future to return the favors. Prayers being sent for all of you. Thanks for the updates and keep them coming! LOVE YOU!

    9 years ago · Reply
  • Chanda Koechner
    Chanda Koechner

    Crying for all of you!! You got this sweetheart! You are going to hog all my prayers!! Eye on the prize. Never, ever give up!

    9 years ago · Reply
  • Kathy Haller
    Kathy Haller

    Love, love, love, love, love. and prayers. You can all get through this, just give what you can when you can, wherever you are and it will be enough. love you!

    9 years ago · Reply
  • Jessica Clarke
    Jessica Clarke

    Robin- There are a lot of things that you are doing right now, but failing is NOT one of them. You are amazing and you are doing way more than most people could in your shoes. Your kids will be affected by this, but not in the way you expect. They won't have the same memories and emotions that you do about it all. It will just be a little token in their pockets making them more grateful and caring people as they grow older. Continue to take care of yourself. Our thoughts and prayers will keep coming from Vermont as well. Jess

    9 years ago · Reply
  • Amy Buessing
    Amy Buessing

    I second Aunt Rose, she's a wise woman!!! Make sure you're taking care of you too!!! Love you!

    9 years ago · Reply
  • Wendy Lierz
    Wendy Lierz

    Hang in there! You're justified in everything you're feeling. Positive healing thoughts your way!!

    9 years ago · Reply