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Shannon Rinaldo - Journal

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Posted 2018-06-25T21:45:04Z

THIS is what we've been up to

I saw my doctors in Houston the week of June 2-6. On the docket this time were several blood sucker appointments, chemo refill, and a consult with a doctor in the clinical trial department. She explained that they are looking into "precision medicine" for me- if I qualify. She explained that people use the term "precision medicine" to mean many different things, but she is using it to mean customized for each patient's situation. They are using a small piece of tumor from the September surgery to see if I have (or more accurately, if the tumor has) some specific epigenetic mutation that they can target. I really liked this doctor. She's Greek, she has an MD as well as a Ph.D. in research, and she realized immediately that she could talk to us on a pretty high level- I always appreciate that. The neuro-opthamologist also modified my glasses so that I can begin getting accustomed to the Peli glasses. I'm not sure if I've adjusted to them, but I'm trying.[...]