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Posted 2018-12-10T17:04:00Z

Biopsy results and next steps

Hi everyone. Just a quick update. I found out on Friday that, unfortunately, the biopsy results showed no change in my cancer after four rounds of chemo. Needless to say, this has been pretty depressing, and I’m still processing the news. The cancer’s not worse, but it’s also not better. Big next steps like a transplant are on hold until the disease shows that it is responsive to treatment.
 
The doctors have decided to change to a different chemo cocktail called Jakafi that focuses on the myelofibrosis rather than the myelodysplasia. From my quick Google search (of course), it looks like this will be a pill rather than an IV or shots. I'll find out more, and the new treatment will start later this week or next.
 
Please keep fingers and toes crossed for a holiday miracle.
 
Love,
Joanne

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Comments (5)

  • Kevin Woo
    Kevin Woo

    Joanne, Our support for you remains unwaivering... with you every step, every moment, every heartbeat ... Kevin

    7 years ago · Reply
  • Nancy SHEPPARD
    Nancy SHEPPARD

    Dear Joanne - such disappointing news that the chemo hasn't knocked it down to size... but glad it is not any worse. A cocktail named Jakafi sounds like it should be at a bar in Bali... so hopefully, this will be the one. I can only imagine your feelings... Love Nancy

    7 years ago · Reply
  • Jeremy Rothenberg
    Jeremy Rothenberg

    Thinking about you and will send you love and light for a holiday miracle 💚

    7 years ago · Reply
  • Rosanne Ogles
    Rosanne Ogles

    Dear Joanne, I send much love and many good wishes for the new chemo treatment to be successful. Hugs, Rosanne

    7 years ago · Reply
  • Kathy Hill
    Kathy Hill

    Sending you love and prayers - during the holidays and always. xxoo

    7 years ago · Reply