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Cole Hayden - Journal

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Posted 2016-12-07T19:01:57Z

December 7, 2016

I know it's been a few weeks so figured I'd post an update with where we're at.

Cole's "event" was on Nov. 9th. We brought him home Wednesday, Nov. 16 and have been here since. He's been on the new chemo pill for 3 weeks now. After that first weekend Cole woke up and spoke, he wasn't able to speak anymore after that. At home he's done a good job trying to communicate, although very frustrating for him and it's been extremely difficult for him. Sometimes we can see he's visibly frustrated/upset, and probably scared, with tears in his eyes. He's been able to do a pretty good job with thumbs up/down with things and was making noises and reacting to things. Sometimes trying to smile as best as physically possible.   Everything damn thing is a struggle for him. But he's so damn strong.[...]