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Cole Hayden - Journal

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Posted 2016-12-07T19:01:57Z

December 7, 2016

I know it's been a few weeks so figured I'd post an update with where we're at.

Cole's "event" was on Nov. 9th. We brought him home Wednesday, Nov. 16 and have been here since. He's been on the new chemo pill for 3 weeks now. After that first weekend Cole woke up and spoke, he wasn't able to speak anymore after that. At home he's done a good job trying to communicate, although very frustrating for him and it's been extremely difficult for him. Sometimes we can see he's visibly frustrated/upset, and probably scared, with tears in his eyes. He's been able to do a pretty good job with thumbs up/down with things and was making noises and reacting to things. Sometimes trying to smile as best as physically possible.   Everything damn thing is a struggle for him. But he's so damn strong.[...]

Posted 2016-11-07T16:21:50Z

November 7, 2016 ~ Admission & Home

After travel and a tiring weekend, Cole continued to sleep nonstop. He also appeared noticeably more pale than normal and just seemed more "off" than normal. After eating at me all morning on Monday I decided to text our Visiting Nurses nurse and see if she could come do his labs one day early instead of waiting until our normal Tuesday time.  [...]

Posted 2016-10-31T01:00:00Z

October 30, 2016 ~ Weekend trip

Cole had his two day chemo 10/19-20 which went well and he was able to come home that day 2 which was great. He then had one day treatment in clinic on 10/27. We knew with the nasty two-day chemo it would be a week'ish before the major side effects popped up so we wanted to enjoy every moment at home.[...]