Share. Connect. Love.

Posted 2019-10-12T17:33:00Z

Chemo # 17 was Tuesday followed by increasingly hard week of post chemo nausea

Last Tuesday I had my 17th chemo.  Now I am struggling through another week of severe nausea.  Despite a regime of four anti-nausea meds, I could not keep liquids down yesterday, so back to the hospital I went for IV fluids and more anti-emetics.  I even threw up in the infusion chair while getting more anti-nausea meds!   Still feeling yucky today but liquids are staying down and that's most important.  My feet, leg, and hands are exhibiting the side effects of Doxorubicin.  It is a hot blistering acidic feeling, different from neuropathy, very unpleasant, but it should diminish after treatment.  I tried a new product, Care By Design pain cream, a 1:1 ratio of THC to CBD that has helped the burning feeling, another use for Cannabinoids!  

What has kept me going through the past few days was the outpouring of donations to GoFundMe.  Thank you, everyone, for believing in me, my campaign to reschedule Cannabis, and the science of this amazing medicine.  Michael is working full tilt to have a "fine cut" of the film by Nov. 15th the deadline for SBIFF.  You contributions are being put hard to work.    

Here is a rambling summary of other happenings: Attending CannMed conference in Pasadena buoyed my spirits, being at a conference with hundreds of Cannabinoid researchers; meeting Prof. Mechoulam, the "Grandfather of Cannabinoid science," and chatting with Dr. Meiri were very life-affirming.  After "google stalking" Dr. Meiri for almost a year, reading his papers, giving myself a crash course in Bio-Chemistry so I could almost understand them, I burst into tears when I saw him.  He was thrilled to hear I shrank my tumor and we had a lovely talk.  He humored me by taking interest in the ridiculous little data set I made of my tumor's response to my cannabinoid formula.  I also interviewed many of the leading cannabis clinicians.  Thank you to Dr. Joe, Dr. MacIllroy, Dr. Sulak, Dr. Bearman and Mara Gordon for your time and willingness to participate in my little film.  And thank you to the amazing McKernan family and employees at Medicinal Genomics; if not for your hosting the first CannMed at Harvard Med School back in 2017, I would not be here.  It was Dr. Meiri's talk, uploaded to CannMed's youtube channel, that convinced me this was real.  You have extended at least one life!  I know that to be true.  

Just a few days after CannMed it was back to LA for an appointment with Dr. Bonni Goldstein, another very experienced Cannabis physician.  She gave me new and detailed dosing instructions and reiterated that she has many patients who come to her with metastatic disease that stay in remission for years beyond expectations!  Since I know my tumor responds, I hold onto that hope.  

And last but not least, I gave my first interview on local SB TV.   

If you have not seen the trailer yet, here it is again.  Watch and pass around.  My 47th birthday is next week.  And aside from the big wish that this is not my last birthday, I would love to get more views on the tube trailer.  As a birthday gift to me, consider forwarding it to anyone who might benefit from watching.   A physician, a biochemist, a cancer patient, or the head of the DEA perhaps?    

Hugs to all,  MK  

 

Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted

Comments (10)

  • EvelynCavins
    EvelynCavins

    People are listening Michelle. You are blessed with a strong voice. See you very soon Evelyn

    one month ago · Reply
  • Maria C
    Maria C

    So sorry to hear you are having nasty chemo symptoms but you have come this far and I know you will persevere. What a terrific interview! I'm proud of you for how you are approaching your crusade. It is through people like you that public policy changes. M

    one month ago · Reply
  • Mike Murray
    Mike Murray

    Your courage to move through these harsh chemo treatments with such grace and strength affirms what we all know: you are AMAZING. And as you dedicate yourself to sharing Schedule 1 and all that it advocates, you are fueling a power of purpose that is truly uplifting. You are going to make this world a better place, Michelle, and you are incredible!

    one month ago · Reply
  • Laurel Lyle
    Laurel Lyle

    Warrior Woman! You continue to inspire me with your passion and hard work— thank you thank you!! Kate has thoughts about linking your go fund me on your you tube etc— all those links! Let’s connect soon darling!😘

    one month ago · Reply
  • James Cavins
    James Cavins

    I'm so sorry to hear of your suffering after chemo. You will persevere on the knowledge that you will soon feel better and you will have won another battle against your foe. So proud of you for attending the conference and approaching some of your heroes like Dr. Meiri. The outpouring of support for your campaign reflects how much we all believe in you and your courageous fight. You are going to make a change in the schedule of cannabis and major research will begin. Many people will benefit. You are making the world a better place Michelle.

    one month ago · Reply
  • Sally Kendall
    Sally Kendall

    Really pleased for you that your work has been recognized with a Do Good Grant! Hope that recognition and the application of the Cannabinoid pain cream has brought some cheer to your weekend. Such irony that marijuana can provide relief from the side effects of the chemo treatments when the treatments might not even be necessary if marijuana were not held hostage in schedule 1. Your voice is indeed strong and it will be heard! Love you and Bruce so much.

    one month ago · Reply
  • Carolyn Walton
    Carolyn Walton

    We can add no more to what has been said above, except admiration and our love.

    one month ago · Reply
  • Michelle Elyse Kendall
    Michelle Elyse Kendall

    Thank you, everyone, for the kind and encouraging words.

    one month ago · Reply
  • Gordon Fox
    Gordon Fox

    Michelle, you're in my Pantheon as A Strong Woman. Hope you know that!

    one month ago · Reply
  • Karen Gillow
    Karen Gillow

    Well done Michelle! The promo is fantastic. I have shared on FB and hope this helps you get more funding to make this very important move. All power to you! and HAPPY BIRTHDAY!!! xxx

    one month ago · Reply