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Derek Young - Journal

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Posted 2016-03-30T04:21:00Z

Neurology

Derek had an appointment with his pediatric neurologist. The pediatric neurologist had Derek take a quick MRI prior to seeing him so he could identify how Derek's fluid was draining compared to his last quick MRI.  The current MRI showed that the ventricles were smaller (less brain fluid backed up) and that there was less swelling in the affected area from the previous MRI. The cyst or the area around the cyst (it is hard to tell exactly) still had about the same amount of fluid or at least still showed up on the quick MRI as about the same size as the previous quick MRI so the pediatric neurologist tapped another 13 ml utilizing his Ommaya Reservoir again.  [...]

Posted 2016-03-21T22:11:49Z

Angela update

I had my 1 month post op appointment with my plastic surgeon. He is very happy with how I am doing. There is slight regeneration starting in my left upper brow. That will take some time to fully come back, but that is not a problem. The incision is very well healed. I cannot feel half of my cheek and most of my ear. The ear part was known and is permanent. I am not sure if the feeling in my cheek will come back. I can still feel my inner ear and it is embarrassing when I cannot find my ear to itch it. I'm getting better at it though:0) [...]

Posted 2016-03-10T22:53:00Z

Another boy with the same cancer as Derek

Sometime in January a family who we do not know reached out to us because they heard of Derek's condition. Their boy, Judah, had the exact same cancer as Derek, anaplastic astrocytoma. They were very kind and offered us any kind of assistance and advice they could.  Judah was diagnosed in December of 2013.  He went through the same treatments that Derek has already done and that Derek will be going through.[...]

Posted 2016-03-08T05:02:00Z

Oh My Ya

Derek had a good PT and OT last week.   His two therapists saw him just before his most recent hospital stay and then about a week after his fluid was drained and they were both pleased with how he has bounced back.[...]