Share. Connect. Love.

Posted 2016-03-14T01:52:03Z

The Waiting Game

I know I said “No news is good news” and that’s been pretty much true. When we decided to stop treatment Korbin said he wanted to be home, and have no more pain. Korbin is still at home, and his pain is being well managed by our wonderful doctors and nurses. He is ready to go, and we’re just waiting for his body to catch up with his mind. In the meantime we are keeping him very comfortable, and enjoying all the time we can with him.  We have his hospital bed in the living room, and we spend lots of time just being together as he goes between being alert and resting. He’s on some pretty strong pain medications and sleeps most of the time- but if we start talking about computer problems he usually chimes right in. He has great hearing!

We continue to be so blessed by the amazing family, friends and community we are a part of. We have family members here each day to help me with Korbin’s needs, and to help get the kids wherever they want to go, and generally keeping me sane. I have taken a leave of absence from work (although I miss my kiddos very much!), and I’m doing my best to follow orders from Korb.

The kids are doing pretty well. We made a decision very early in Korbin’s diagnosis to be very open and honest with them, and we continue to do so.  They know exactly what’s happening with their dad, and we have given them the freedom to choose when they want to be at home with us, and when they want to join in their other activities. They are doing a good job of asking questions and staying involved in what’s happening- without having it overwhelm them.  They know that when it’s time for Korbin to go, we will call them home to say one more, final goodbye. It’s very hard to focus on school right now, and Erik has been choosing to come home in the afternoons. We’re so proud of him for passing his soccer referee class today though!  Ellie really enjoyed being a flower in Alice in Wonderland this past week with the Mt. Horeb Middle School, and we are so thankful for supportive teachers and friends that are helping all of us get through this.  

Thanks for checking in! 

Di

 

Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted

Comments (39)

  • Lexy Austin
    Lexy Austin

    Thinking of your family and sending hugs to all of you.....

    10 years ago · Reply
  • Char Smith
    Char Smith

    Di: Thanks for the update. My thoughts are with you all, every day. I pray constantly. God has you enveloped in his loving arms. Take Care and God Bless!

    10 years ago · Reply
  • Mimi Wuest
    Mimi Wuest

    You are all in my heart and my prayers. Keep the love flowing. Mimi

    10 years ago · Reply
  • Helen Kahl
    Helen Kahl

    You are an amazing, strong family. God surely has you in His strong and mighty embrace. All most of us can do is send our love and continue to pray for all of you. Peace.

    10 years ago · Reply
  • Vicky Rosenbaum
    Vicky Rosenbaum

    Think about you all the time. Life is just so unfair sometimes, and this is one of those times. Ellie did such a great job in the play. I wasn't sure what to expect from a middle school age play. It was amazing. Congratulations on a job well done, Ellie! Congratulations Erik on becoming a soccer referee! Hang on to each other as I know you are and reach out to any and all of us as needed. We're here for you. Sending lots of prayers and hugs to all of you.

    10 years ago · Reply
  • Melissa Munson
    Melissa Munson

    I am struggling to figure out what to say...praying for peace, comfort, and whatever else you need at this time...God knows. Thank goodness for faith. I wonder often how anyone lives without it? Hugs friend!

    10 years ago · Reply
  • Heidi Mancusi
    Heidi Mancusi

    Troy and I are sending love and prayers for you. You are in our thoughts.

    10 years ago · Reply
  • Jennifer Stoddard
    Jennifer Stoddard

    Thanks for the update. You were on my mind all day today, well, really, every day. Much love to all of you, Korby, Di, Ellie, and Eric.

    10 years ago · Reply
  • sue bovre
    sue bovre

    Korbin you are such a loved young man. You have always been bright and witty loving and caring to everyone. Through this long painful journey your attitude has been amazing. You and Di are such a great couple so happy you have had each other to get you through this. So proud to call you my nephew you are such a great photographer and computer pro. Will miss both of those talents. You have a wonderful wife Di she has been your rock so strong and loving. Those children of yours have grown up so much in the last few years Ellie is such a fun loving beautiful young lady. Erik is such a fun kid full of energy and how he loves his soccer. A big part of who you are Korb are your parents. They love you so much and would do anything for you. I know you love and appreciate all they do for you I admire them both so much. I want you to know how much a part of Uncle Marcus and my life you have been. From little on you have made us laugh when you were about 3 years old Uncle Marcus was doing some work on the radio in his car and having trouble finding the problem and you said in your little voice "did you check the fuses"!! (we were amazed). We always looked forward to Christmas Day with your whole family at our house we had so much fun with great conversations good food and many memories. Easter was another favorite holiday with the clues to find your Easter basket and through the years seeing your kids hunting for their baskets. I loved the relationship you had with our son Marques and daughter Lisa plenty of teasing and love for each other. All the help you gave us for computer help wow did I learn a lot from you Thank you Korbin for all you gave us your love meant so much. Sleep well my dear nephew and on to a new life. We love you so much! Aunt Sue and Uncle Marcus

    10 years ago · Reply
  • Adam Mertz
    Adam Mertz

    Di, appreciate the update. Was sitting up the hill thinking about you guys a lot tonight. Great job in the play, Ellie, and congrats on earning your license, Erik! Sending you all love, strength and peace.

    10 years ago · Reply
  • Julie Fitzpatrick
    Julie Fitzpatrick

    May the strength of family support each of you now, and always. As a friend of Korbin's mom, Deb, since childhood, I have witnessed how family has provided the bottomless source of love and joy that makes sense of even the hardest times for everyone in Deb's family. And her family includes a lot of folks. I wish you all the best that this time can offer. You are in my thoughts and prayers.

    10 years ago · Reply
  • robbie siben
    robbie siben

    Korby, Still thinking about you & prayers go for you & your family. So glad I got to know you. Rest easy.

    10 years ago · Reply
  • Amy Hall
    Amy Hall

    Your family continues to be in our prayers. You are a strong, inspirational couple who have displayed amazing grace over the last five years. May you find comfort in each other's presence throughout the journey. Hugs and peace to you all.

    10 years ago · Reply
  • Marti Fechner
    Marti Fechner

    You all are handling a horrible situation with incredible grace. Continued prayers.

    10 years ago · Reply
  • Rhonda
    Rhonda

    You are all in my prayers!! Please let Korbin know that it was a real pleasure meeting him at Gilda's. We miss him and are Praying for a gentle and peaceful journey. With love, Rhonda

    10 years ago · Reply
  • Sara Strain
    Sara Strain

    Korb and family, I don't know what to say to such great family going thru what you are at this time. We have learned to love you from day one and have especially enjoyed your humor and photography. So glad we have your book for memories for years to come You guys are my heroes, so brave, open and courageous! Proud to be a part of your family. Korbin may you rest in peace when the time is right. Know that you have been loved and will be loved forever in our hearts and memories. Love you forever and always. Aunt Sara and Uncle Greg

    10 years ago · Reply
  • Kolleen Nesheim
    Kolleen Nesheim

    Thinking of you and your family and praying for peace and comfort in the days ahead. Your faith amazes me.

    10 years ago · Reply
  • Marjorie Connors
    Marjorie Connors

    From all of us, Love and Peace for all of you.

    10 years ago · Reply
  • steve munson
    steve munson

    Hello blessed friend, I hesitate corresponding, knowing you and your loved ones are being challenged with difficult moments. You and your family are in our daily prayers. But we are only a few amongst the thousands of those who hold you in their thoughts and prayers. Many lift you up. Thanks for the foundation of faith you and Diane have structured for your family. You have and will forever continue to inspire many. Thanks for your bravery demonstrated through adversity. We are humbled. Thanks for sharing the beauty of your gifts and exposing the simplicity within our surroundings. The Lord tells us to step back from the busyness of our world and … see His creation. You surely captured it! Find fortitude in the living Lord, fellow brother, as He will give you eternal rest. Draw strength and courage through all those who care and love you so much. Korbin, Diane, Ellie, Erik; you all are truly warriors of God! Love from us all, Team Munson

    10 years ago · Reply
  • Becky
    Becky

    Thinking of you and your family wishing for peace and no more pain for Korby life is not fair my memories of Korby were always lending a hand to help so in your time of need please know we are all here should you or your family need anything. God bless you Berg family and I will continue to pray for your peace. Becky Meinholz and The Hellenbrand family

    10 years ago · Reply
  • Tamra Errthum
    Tamra Errthum

    Thinking of you all during this time! God Bless you Berg Family.

    10 years ago · Reply
  • Andy Erdman
    Andy Erdman

    Keren and I have you and your family in our thoughts and prayers everyday and are happy you are able to be by Korbin's side at home where he wanted to be. Made us smile that he is still solving IT issues like only he can!

    10 years ago · Reply
  • Stephanie Dejewski
    Stephanie Dejewski

    Love you Korby. You are a graceful, sweet soul. Peace and Light be yours and your family's.

    10 years ago · Reply
  • Kate Hook
    Kate Hook

    Wishing you all strength, peace and comfort!

    10 years ago · Reply
  • Caroline horn
    Caroline horn

    Thinking of you during this difficult time. Peace and love.

    10 years ago · Reply
  • ANN SMITH
    ANN SMITH

    I have been thinking about Korby so much lately. I remember the little, funny guy that would come down and visit me when his dad’s business started in the basement. I enjoyed his visits so much. He went on to babysit my boys and Jared just told me recently that Korby was his idol when he was young. Di, Korby found the perfect spouse when he married you. I’ve been amazed at the strength the two of you have had through all of this. Let me know if I can do anything for your family. I continue to pray for all of you. Hugs! Ann Smith

    10 years ago · Reply
  • Char Smith
    Char Smith

    I am praying for strength, comfort, love and peace for all, as you continue your journey.

    10 years ago · Reply
  • Justina Harvey
    Justina Harvey

    We are praying. I am praying that God gives you all your "daily bread." I don't know what that is exactly, but I think it's what Jesus thinks we need to be whole. You are all such an inspiration. Daily bread for you all, forever. Amen. <3

    10 years ago · Reply
  • Pence Revington
    Pence Revington

    I really admire the approach you and your family are taking. It is love and service to life in a very pure form. Korby is a very special person. Please if you are ever having an overwhelmed-single-mom moment, put me on the list after your go-to people. I am right in town, I can drive. I work from home so I'm somewhat flexible. Pence 608-334-2464

    10 years ago · Reply
  • Jackie & Mike Errthum
    Jackie & Mike Errthum

    Sending strength, faith & prayers to you & your family. The Errthum's; Mike, Jackie, Kaylee & Hanna

    10 years ago · Reply
  • Susan Docken
    Susan Docken

    thinking of you and praying for you daily. I have felt so honored to know you all and your family. I am so glad his pain is now controlled. It is so hard to deal with pain and hopefully he is able to rest now and have some peace and comfort. Hugs to all of you. Susan

    10 years ago · Reply
  • Niki Wood
    Niki Wood

    Thanks for the update. Your entire family is so amazing and kind. Our hearts and thoughts send you peace and love. Nameste- The Woods

    10 years ago · Reply
  • Douglas Jenkyns
    Douglas Jenkyns

    Love, hugs and prayers from the Jenkyns' to the Bergs.

    10 years ago · Reply
  • Kari Tranel
    Kari Tranel

    You are all in my thoughts and prayers. May God's arms surround you all with peace..

    10 years ago · Reply
  • Brian Binversie
    Brian Binversie

    Diane, As difficult as these past few posts have been to read (and I'm sure for you to write), your family's positive message has been truly consistent and inspiring -- all the way down to Deanna. I smiled when you mentioned what Allie and Eric have been up to as if I received the message from Korbin's desk at the beginning of a Monday. I'm so happy that they have found the strength to pursue their passions with everything going on. As a former soccer player and coach Eric should be very proud of his certification! I know how challenging this position this can be, but if works hard and is fair he will do just fine. Know you are constantly in my thoughts and prayers. -Brian

    10 years ago · Reply
  • Stacey Ann Esser
    Stacey Ann Esser

    I love you both very much. I miss all the wonderful & fun times we spent together. You are a strong and incredible family. I am always thinking of you ♡ Sending all my love your way ♡ -Stacey

    10 years ago · Reply
  • Brenda Martin
    Brenda Martin

    Praying for your whole family! Korbin & Diane, Ellie and Erik, your family is so loved in our community. It is so hard to understand why things happen. All I know is that it is so important to cherish and love each other. Because of your relationship to others, you have so many that are here for you, supporting you always. May God guide you each day and give you the strength you need. We love your family. Love, Brenda & John, Ty, Sam, Eric, Nathan, Colton & Lauren

    10 years ago · Reply
  • KAIA BAKKEN
    KAIA BAKKEN

    So much love to you, Korby, and to your wife, kids, sister, parents, all those close to you who are walking alongside you right now. Strength and peace and courage be to you. I wish I could give you a big hug and reminisce about high school with you, and all the silly, wonderful things about growing up in Mount Horeb. You are a hero to me, with your graciousness and your kind spirit. May God envelope you in his love.

    10 years ago · Reply
  • Marah Odgers
    Marah Odgers

    Hi Miss Diane - Our family is thinking of you, your husband and children. You are such a wonderful & positive lady... Isla thinks the world of you and misses you dearly. The Odgers Family

    10 years ago · Reply