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Posted 2016-02-20T03:42:00Z

R1 D18. Ups and Downs

The past few days have been amazing around here. The weather has been warm and sunny. I won't even complain about how windy it was because it was too nice for February in Kansas.

Mike's attitude and health seemed to match the weather, too. On Thursday he spent most of the day in the field. When he came home last night he was all smiles. I told him I was so glad that he got to be in the tractor, in his comfort zone. Me, I prefer chocolate. I also told him I was worried that he would overdo it. I didn't want him to work so hard or put in such a long day that he would be exhausted the next few days. He reassured me that it made him FEEL so good to be out there. He was HAPPY, and that is something I haven't seen in him in far too long. Seeing him like that almost made me forget that he has cancer. How can he be so sick when he seems so good?

This morning we went to the KU Cancer Center to meet our new doctor, Dr. Sirridge. My friend, Leslie, had arranged all of this for me, and I will forever be grateful to her. I instantly loved his nurse because I knew she was the type of nurse who wasn't going to let stuff fall in between the cracks. When Dr. Sirridge came in, I knew we were in the right hands. Some people just give you that feeling. He was nice, but not going to sugar coat things nice. He was funny, but he was serious. He was a straight shooter kind of guy. We LOVED him. So, my impression of KU Cancer Center North? Love Dr. Sirridge, Love Deb, Love Leslie. We got set up to go to North KC Hospital on Tuesday morning and get admitted for the 2nd round. Things are looking up!

When we got back to town Mike wanted me to drop him back off at the farm where they were working. I should have taken pictures of him. No one will believe me when I tell them that for 2 days in a row now, Mike Horton has been farming in a t-shirt and sweatpants. No overalls! Ha Ha!! This is the longest time period in my life that I haven't seen him in overalls... maybe now would be a good time to burn all of them? :) Anyways, so it was awesome to drop him off at the farm.

He came home a little early, again, so happy. I was truly starting to feel like this doesn't feel real. But in the good way. I guess I was more just pretending like life is normal and my husband doesn't have cancer. He's fine. He's more than fine. We've been so normal the last couple days and I have LOVED it.

The girls' pre-school teachers stopped by later in the afternoon to bring some food for breakfast tomorrow. I thought it was so sweet, but the best part was how excited the girls got about having their teachers at their house. They haven't stopped talking about it all evening. It really is the little things that mean so much.

Right after dinner (thank you, Jen) Mike asked me to look inside his lip. There it was. His first mouth sore. We read a few tips on things he can do to help take care of it and try to prevent more. He crawled in bed to snuggle with the girls and watch tv for a little while, and I got caught up in the depths of the internet. Dang it. I was hoping we could maybe bypass this side effect. So, I'm sitting there wrapped up in another woman's blog, who fought a hard battle with cancer, but sadly, passed away at the age of 42. I wasn't purposely doing that to myself. I didn't know that was how her story ended. But it was hitting me like a ton of bricks, this cancer crap SUCKS. My husband is 42 and has 3 kids under 6. He WILL beat this though. I know in my heart he will be cured. Then I hear, "Hey Bean? Come here."

I walk into our room, thinking he's going to either, 1. ask me to shut the lights off, get him a drink of water, fluff a pillow (all those silly little things that he likes to make me do when he's trapped with a sweet little girl on each arm.) or 2. ask what I'm doing and then laugh at me for the tears that are settled in my eye rims. He says, "Come here. Over on this side." So I do, and I sit on the bed beside him and he shows me a clump of hair in his hand. Dang it. Dang it. Dang it. Dang it. I lost it. I can't explain it, or understand it. He kinda laughed at me, and said, "Bean, it's ok. We knew this was going to happen." I know we knew. But I wasn't ready. I'm not READY for my husband to look sick from the outside. I know that's so crazy of me. He has always said he doesn't care about losing his hair. He just cares about getting healthy. I never felt like I feared him losing his hair. I honestly didn't think it would bother me too much. And then, there I am, uncontrollably sobbing over my shedding husband. Really, the dog sheds worse than this, but it just felt so hard. Then Molly asked why I was crying over Daddy's hair falling out. She asked, "Daddy, what are you going to look like without hair?" Mike laughed at her and said, "I'll look like Papa! But more handsome!" (Sorry, John, don't take that personal... you know he thinks he's the best looking guy around!) So then Lucy is laughing at the idea of Daddy being bald. And how can I be crying when everyone else is laughing? So I laughed too.

I'm feeling a little deflated now, but also renewed. I'm reflecting on these past few days and all of the emotions I've had. I've been able to practically forget, for periods of time, that Mike has cancer. I got to hear the sound of his diesel truck roaring up the driveway to signal dinnertime. We didn't feel like our identity was cancer this whole week. It was great. And then cancer snuck back in the door like, Hey remember me? I'm still here. Go away, cancer. Next week we pull out the big guns again.

Is it June yet?

 

xoxo

Robin

 

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Comments (17)

  • Brenda Lang
    Brenda Lang

    Laughter is the best medicine. I'm glad you guys can find something to laugh at! 😀 Hair is overrated anyway, I mean, everyone uses the crap out of these emoticons and none of them have hair but they're all so stinking cute anyway! 😉☺️

    10 years ago · Reply
  • Jerre Rush
    Jerre Rush

    As I read your post, Robin, I was sad and happy all at the same time. As you know, life is not fair.....sometimes the pain and heartbreak and fear of the unknown can consume us. But life is also filled with the most beautiful, breathtaking moments that are filled with love and happiness. Thanks for sharing your moments (both good and bad) with us. Continued prayers for all of you!

    10 years ago · Reply
  • Chanda Koechner
    Chanda Koechner

    I love how your girls react with such grace and bring laughter to the world! I love how he calls you Bean:) I love how you had normalcy for a few days. I love how the teachers came over and Jen made dinner. I love how you feel good about the dr. I love how the sound of his truck means dinner time! But yes, I hate cancer!

    10 years ago · Reply
  • Bridgett Blasi
    Bridgett Blasi

    Thank you for your posts. The laughs and the tears!!

    10 years ago · Reply
  • Audrey Cox
    Audrey Cox

    Been thinking about you guys all week! Glad you had a good week to match this beautiful weather! It's all going to be O-K!!! Love you, enjoy the weekend!

    10 years ago · Reply
  • Wendy Lierz
    Wendy Lierz

    Oh, Robin....hugs, hugs, hugs. I read your post and feel the emotions. It's not the hair loss thatgets you, it's the WHY the hair falls out that does. I love that you're able to write it all out just like you feel it. I'm sure that has to help. Continued hugs & prayers.

    10 years ago · Reply
  • Jessica Clarke
    Jessica Clarke

    Mouth lining = quickly reproducing cells. Cancer = quickly reproducing cells. The chemo is working its magic. Not much helped me with the sores, other than the fact that your mouth heals quickly so it will get better quickly once he turns the corner. My hair started coming out at day 17! That is when I went G.I. Jane buzz cut. The NICE thing is that his lashes and brows will hang in for a long time (months). You don't look really sick until those go :) No one else's story is your story. You and Mike are special. Lots of prayers are going out to you and your family! Jess

    10 years ago · Reply
  • Nancy Rutland
    Nancy Rutland

    Your updates should all be put in a book someday so other people going thru it can read it! It helps you roll thru all the different emotions! You have a great talent in expressing words and feelings. I am praying for all of you. I am so glad Mike got to do some farming! Love you all!!!

    10 years ago · Reply
  • Joe Weber
    Joe Weber

    Robin , the date for the benefit dinner for you ,Mike and the kids is March 19th, 5pm at the VFW in Atchison. We are planning to have chili and a soup of some kind and a silent auction. Anyone who would like to donate an item for the auction can contact me or Jennifer at 913-367-2742. Please leave a message if no answer. Jennifer hates to answer phone when napping. Don't tell her I said that or I'll be in the doghouse again.

    10 years ago · Reply
  • Lori Kearney
    Lori Kearney

    Having a strong will is the key. He is strong and will fight hard. My prayers are with your famly.

    10 years ago · Reply
  • Mick Remondino
    Mick Remondino

    Thanks for sharing Robin. Tell Mike as a person that has 20 years of experience.....bald is where it's at....save money on shampoo, save time in the shower....and you can tell people you shave your head because it is the new style amongst kids these days. Joke of the day: Teacher: "If I gave you 2 cats and another 2 cats and another 2, how many would you have?" Johnny: "Seven." Teacher: "No, listen carefully... If I gave you two cats, and another two cats and another two, how many would you have?" Johnny: "Seven." Teacher: "Let me put it to you differently. If I gave you two apples, and another two apples and another two, how many would you have?" Johnny: "Six." Teacher: "Good. Now if I gave you two cats, and another two cats and another two, how many would you have?" Johnny: "Seven!" Teacher: "Johnny, where in the heck do you get seven from?!" Johnny: "Because I've already got a freaking cat!"

    10 years ago · Reply
  • Arlene Henry
    Arlene Henry

    Hate cancer, but love your story! You just put it out there so beautifully and makes us laugh and cry!! So glad your week was a better one!! The feeling I had when I came there on Thursday, to find Mike out farming and not in bed was a great feeling!! Enjoyed the time outside with you and the kids even though we almost blew away!! There has been a Benefit set up for Mike and Robin at Seneca on April 10th.. Pulled pork meal and Auction! Will be posting a flyer for more info. Cont to pray for healing!! Love Mom

    10 years ago · Reply
  • Beth McManigal
    Beth McManigal

    You are so brave.

    10 years ago · Reply
  • Karen Bell
    Karen Bell

    Robin love reading your updates. Dr. Sirridge has been my brother Alan's doctor for over 10 years now,he just loves him. Alan has Polycythemia Verde a disorder of the bone marrow causing too many red blood cells to be produced. Alan said, to mention him next time Mike Has an appointment. Thinking of you guys, hang in there.

    10 years ago · Reply
  • Kathy Stallbaumer
    Kathy Stallbaumer

    Hugs and prayers from St. B. We are praying for you here

    10 years ago · Reply
  • Dana wingerd
    Dana wingerd

    Don't worry that guy of yours has a mane of hair once he is on the rebound it will be back in no time!

    10 years ago · Reply
  • Traci Carpenter
    Traci Carpenter

    When I read your updates, I feel like I'm right there in your home with you and your family. I think you've had a hidden talent for writing all this time! You wrap a little of your humor and wit (things we LOVE about you) into this and warm all our hearts in the process. Continued prayers and love to you, Mike, and those beautiful babies! 😘

    10 years ago · Reply