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Joanne Bethlahmy - Journal

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Posted 2019-12-28T02:15:20Z

Quick update

Hi.

Based on all the recent inquiries and confusion, I should have told all of you that I came home from the hospital on Saturday after a week's stay. Sorry! I'm driving down once a week for monitoring of the gut situation, including earlier today. My stomach is a lot better than it was before the hospital stay (with all those steroids, just call me Barry Bonds), but I'm still in some pain and working my way up (and back down) from liquids. I've lost 10-15 pounds and any recently acquired fitness so I'm kinda back to where I was when I came home in May. Sigh. At least I know it can be done....[...]

Posted 2019-12-17T04:49:00Z

Need another holiday miracle

Hi everyone,

Hello from Stanford once again. This is a complicated and hard update to write, but your prayers, visualizations, etc. are vital now. After months of good news, I’ve had a significant  downturn and am facing two life threatening situations. My donor cells are active where they shouldn’t be (attacking my gut) and have almost disappeared from where they should be (making good blood cells)[...]

Posted 2019-12-14T03:38:00Z

Back to Stanford

Hi.

I will write more later but wanted to let everyone know that I will be checking back into Stanford Hospital tomorrow afternoon for 1-2 weeks. They need to fix the graft versus host disease in my gut as well as reduce the myelofibrosis, which has increased. I don't know my room number yet, but I will be easy to find in the BMT unit or via text.[...]