This is a difficult but important entry to write, and New Year’s Eve seems as perfect a time as any to sit down and face it, putting “pen to paper” here to bring a close to this beautiful experiment.[...]
Nettie Benak - Journal
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I had a new MRI on Tuesday. It didn’t turn out as I had hoped. The doctor walked into the room and asked me right away how I was feeling, and so I assumed something wasn’t right, because every time she comes in, she says, “Scan looks good!”. So, when she didn’t say THAT, I knew something wasn’t right. So, I told her my symptoms which were: I have been off balance and pre-occupied, it is hard for me to stay on task. And then she said, “It is growing and it has crossed over to the other side.” That means I cannot have surgery on it. I am going to start a new treatment tomorrow (Friday) called Avastin. It is supposed to stop the blood flow to the tumor, which is how the tumor grows. You may have seen it advertised on tv. I will be getting it through my port every 2 weeks for 6 months. [...]
Time to update my blog.
My hair is growing like a weed. I have had 2 haircuts since it has been growing. I don’t mind curls on other people, but I prefer my hair to be a little straighter and more manageable. When I look in the mirror and see all my curls, I feel like Al Franken’s love child. [...]
It’s been a while since I’ve added to my blog. A lot has happened. I’ve been on a couple trips, one of which was to Kauai with my kids and their families. The scan before going to Kauai came out clear, but we had all decided that if the scan was not good we were still gonna go on the special trip anyway. So, it was a big relief that it came out clear. [...]
Nettie’s little sister Susan here. I was in Omaha recently, and the 3 Thompson Sisters had a couple of sleep-overs, which was terrific (well, the night my blow-up bed went flat wasn’t terrific, but that’s another story…). While I was there Annette had an MRI and got the results. She wanted to write about it, but instead of BLOG she VLOGed – a video log! So here you have it – Nettie’s first VLOG. She talks about her MRI, her dislike of being “poked”, her bucket list, and even reveals her HAIR! [...]
It has been a LONG time since I've written on my blog, and I have a LOT to say.
November 11th was the big Sketti for Nettie Benefit. It was a huge success. Sooo many people showed up - I was amazed. People I hadn't seen in years were there. I tried to talk to as many people as I could, but it was impossible to talk to everyone. I appreciate everyone who worked on the committee and put
everything together. The donations were overwhelming. The food was delicious. The prize baskets were outstanding. The music was perfect. And the MC was his usual silly self. I thank everyone who played a part in it. The "Be Brave" video was one of the highlights for me. I still watch it almost everyday, and it brings tears to my eyes almost every time. The video highlights special people in my life, including my family, my friends, my students, my co-workers, even my care givers. Here is a link to the video so you can see it: Kick Some Mass Video . The benefit really uplifted me and helped me get through to the end of the year.[...]
I have my 2nd round of chemo under my belt. And round 2 kicked my mass! I am so glad it was only for 5 days. It was a double dose compared to what I took my first round. I finished on Sunday night - thank goodness that was the last one because it nearly was a knock-out round. I don't think I could have done another day. Now I have 3 weeks off, and then I start all over again. [...]
This morning when I woke up I was feeling soooo tired and exhausted. I could hardly get dressed. I could hardly fix my hair, the little hair that I have left, that I had to ask for help. The radiation has finally done a number on me. But I am proud to say today was my last day of treatment. I went through six weeks of radiation at the Buffett Cancer Center - Monday through Friday, and six weeks of chemotherapy - Monday through Sunday. I never missed a single treatment. I have been told not everyone makes it through all of their treatment - they have to stop because they can't handle it. It is a good thing it ended today, because I don't know if I could have handled another day. I get 3 weeks off and then start another chemo pill, which is a stronger dose. I hope I can handle this one like I handled the last one.[...]
After today I have ONE WEEK left of radiation, and I couldn't be happier. Looking back on it now, it has gone pretty quickly. But on that first day it felt like it was going to be an eternity until it ended. On the last day I get to RING THAT BELL, and I hope someone videos it so you all can see it, too. Cuz I'm gonna RING THAT BELL like I've never rung a bell before. [...]