Yesterday the surgery was a success! Dr. Peters and his entire team have been absolutely phenomenal. The neurostimulator was implanted (temporarily) where it will stay for up to 2 weeks as they monitor the progress. (Note: it could take 2-3 days post surgery to start feeling a lot of progress). If, after the 2 weeks, there is a significant decrease in pain without adverse complications the device will be implanted permanently. So far, though not 100% better, mom is experiencing much less pain in relation to Pudendal Neuralgia.[...]
Mona Harper - Journal
Read Entries & Updates
This morning, mom, dad and myself packed up and drove very much North. We came out of state to seek medical care for mom with a doctor who has shown true care and concern for her and her condition. Unfortunately that has not been a common occurrence for our family. The last doctor (in GA) that we thought could help us with the neurotransmitter?... It was a heartbreaking, demeaning and deceiving experience. It was the first time I was actually there for a consult with my parents and was very overwhelmed but that's not what I wanna talk about today. We feel SO BLESSED where we are right here, right now and that's what I wanna focus on for right now![...]
That's me. Mama Mona - 30 years ago. YES in a mohawk... bowtie and a flannel shirt. Wearing my sunglasses and looking rather fly.
My sunglasses were protecting the sunlight but not the SON-light. However, God protects me as I am awake and face every day in excruciating pain from my waist down due to complications from pudendal neuralgia. I could not have imagined at 20 years old as I looked so fly into the sun that my plans could change so rapidly. I, like so many of us, thought I had thought it all through. But although my plans changed, God's plans have never changed and they never will. We just have to learn how to align with HIS will and HIS way.[...]
We no longer have an "idea" of what could help our mom but we have a goal :) A piece of tangible hope has landed in our lives. It's called a Neurostimulator and has an 85% chance of a decreasing my mom's pain by 50%! There is no "100%" but this is more hope than our family has seen in a very long time (in the medical sense).[...]
The hardest part about chronic pain is never knowing what's next. We are currently facing difficulties with Mona's health that have brought daily challenges. This past week Mona was hospitalized, via ambulance, due to severe pain. After spending hours in the emergency room they told her they did not know exactly what to do. After being discharged from the hospital she and James went to a second hospital. As of now the Harper's have not been able to find much hope.[...]
:: APRIL 27, 2015 ::
Taken to the hospital via ambulance. Prayers needed. This picture was from yesterday when I worshipped God like it was my first and last time...as usual. Comforted by my husband's words from on high... Even though the battle is the Lord's you still have to show up. I decided some time ago that I would be dressed up for the battle. [email protected] on Instagram[...]
Hey everyone it's Jamie. I just saw my last post and this one will seem quite similar... today we are home!
Mom was hospitalized on Mother's Day/her birthday. She was no longer responding to the medicine she was on and was taken on a stretcher. They immediately took her off of that medicine and she was admitted to the hospital that night. They stopped using that one and spent the last week and a half trying to find the best solution for pain management.[...]
Mona (Mrs.Mona) was discharged from the hospital and has made her post-surgery visit with the doctor before she returns home. The Doctor expressed his satisfaction of the healing of the incisions and prescribed a regimen of medication for her in order to manage her pain levels as she recovers from the surgery and awaits the healing process of her condition. The doctor confirmed that there is not a definitive schedule that can be ascribed that can determine how long the healing process will take place other than the possibility over a span of years. Nerve restoration and functionality is unlike bones and organs, it takes time that infringes upon our patience. Mona is resting and following through with her regimen endeavoring to regain her strength and prepare for travel back home. [...]
Welcome to the Mona Harper support family! This site is for family and friends, old and new, to organize our efforts to support this extraordinary person. This page will serve as your home base for rallying the troops, receiving updates , and raising dearly needed funds to support Mona Harper. Here's the plan:
Your First Step: Please take 30 seconds to click on the "Follow" button on the top right of this page. This will allow you to receive updates, read journal entries, make donations, share Mona Harper’s story on social media, and help the family with week-to-week calendaring needs. Though not mandatory to follow Mona Harper’s page, we encourage you to easily create an account with your name and email in order to be able to post photos, leave comments and sign up as a helping hand on the Calendar page. Feel free to upload a photo of yourself to your profile so we can get to know and recognize others on Mona Harper’s support team. After clicking “Follow” above, read on to learn more about what you can do to help.
Journal: This tab is where you can read the latest entries posted for Mona Harper and our support team. You may see additional authors writing updates here to help alleviate pressure for Mona Harper and expedite information sharing. Each post is followed by a photo and name of the author of the entry. You can reply with supportive comments to any journal entry, or click on the name of its author to send a private message.
Posts: This is where you can leave an encouraging message for Mona Harper and family, and to read thoughts left by others! If you have something pressing you'd like suggest that everyone sees (e.g. a fundraiser or upcoming event you're spearheading), please don't hesitate to contact us via private message so we can consider sharing it more widely in the Journal sections. There will undoubtedly be many coordinated efforts and events ahead, and we want to make certain they’re organized and publicized through this site to help drive the greatest possible impact.
Calendar: Please see this important section to learn what the family needs NOW. This will be an especially helpful section for locals in close proximity to Mona Harper. This is an up-to-date calendar which will list the family's immediate needs such as child-care, rides, and meals to help most in the short term. If you see a need posted and can fill it, please sign up through the calendar page directly (i.e. not through private communication) to let us and others know that you've committed to that need. Please check back often to help out with the most recently posted needs!
Donations: The very most impactful way to help Mona Harper’s is to make a direct donation right now. After insurance participation, bills and related costs are expected to reach several thousand dollars. This fund will be used at the sole discretion of Mona Harper and family to help manage all related expenses, and will give them the flexibility to take time off work as needed to directly support Mona Harper’s. Donations can be made securely using credit or debit card for any amount. PostHope.org generously makes these donations free of any fees. All donations, large and small, come with the eternal gratitude. Thank you for your generosity in considering what amount you are personally able to give.
Perhaps more importantly, you will also find the tools to share your donation and Mona Harper’s story with friends and family via Facebook and social media. After donating, please click the social media buttons to share far, wide, publicly and OFTEN! We believe that many kind strangers online will feel moved by Mona Harper’s journey.
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Don’t Forget! If you haven’t done so already, please click “Follow” on the top right. It’s your very next step to showing your support!