Share. Connect. Love.
The 1-10 scale. I don't know about all of you but I detest this scale. It is so basic yet so difficult to pick a number at least to me anyway.
I can honestly say my 2 and 3 now would have been determined to be a 10 by me and taken me to ER over a year ago. However, there is something about living through polytrauma and having a closed head injury, and ongoing chronic pain on top of it all that changes the way I interpret my pain and tolerance levels.[...]
Sleep....or should I say the lack thereof. I just have to say that the me "before" and the me "now" have very different sleeping schedules.
I will say I suffer from a really screwed up sleeping schedule now. I have numerous nights of insomnia. I don't know why I feel shame about this when speaking to my healthcare providers. It's ridiculous to feel shame for something I am unable to control. Yet they speak about "sleep diaries" and "good sleep hygiene" and then tell me I should try to "avoid naps during the day". This became such a toilsome burden to me to get back to a sense of "normalcy" and be able to report back to them that I was a good girl and doing what I should be doing to make myself well.....to make my brain well.[...]
Because of the unusual characteristics of each brain injury, no one knows what to expect - not the doctors, not the therapists, not the survivor, not the friends, not the families. No one. Each brain injury has it own special journey to wellness. Some injuries leave behind its own unique signature.[...]
Hope matters. Love matters. Forgiveness matters.
Because we may not understand, may not say the right things, and can't fix it - -[...]
https://www.youtube.com/watch?v=b-NMlgccnTA
Just imagine. You have come so far, accomplished so much. Be encouraged. Just imagine.[...]
Keep on keeping on. Caren, keep staying between the shores! Love you!
https://www.youtube.com/watch?v=l8ApMkSHwd8&list=RDl8ApMkSHwd8[...]
This was a great day! On March 2, 2015 we HAD to go to the Meijer Gardens to see the Butterfly exibit, which we all missed last year as I was still hospitalized.This is me, Caren, with my amazingly supportive, and overwhelmingly devoted and loving husband on the first adult family adventure since the wreck. We went with my mom and brother. My mom, a rock of support and the one who created this website for me, and my second best friend. A first for my brother, so it was woderful to watch him in this evironment and being grateful I was still alive to be with them all - a metamorphosis all the way around. [...]
