A number of people have mentioned that they missed the December post announcing the event we have planned to celebrate Steve's life this Sunday. Details are below. Please share freely. [...]
Steve Wing - Journal
Read Entries & Updates
It is with great sadness that we write this. Steve died peacefully this morning at home with Betsy, Ann and Marion at his side. His five weeks at home with hospice care were filled with sunshine, happy visits with friends and family and an amazing ability to remain engaged with the world in spite of rapidly declining health. It wasn’t until the last couple of days that it became evident that he wasn’t going to be here much longer.[...]
Steve has been at home with hospice care for a month now. Happily, October brought us weeks of warm, sunny days that coaxed him out to our patio on many occasions to enjoy the sunshine and fall foliage, to talk with visitors, and to watch his grandchildren play. There has, however, been a marked decline in his energy and stamina in recent days. While still mobile, he uses a cane for stability, and he increasingly seeks and finds comfort and tranquility by resting quietly indoors.[...]
Since the last update, Steve finished a course of the final chemo drug available for him. He saw his oncologist on Thursday and his labs showed that his cancer had progressed in spite of the chemo. And unfortunately, at this point his cancer is too far advanced for him to be eligible for the clinical trial that he was wait-listed for. So he is out of treatment options. He has been referred to hospice and we are scheduled for our first home visit next week.[...]
Steve's CT scan and lab work this week showed what we had begun to suspect, that the liver tumors have increased (significantly so) in size and number, so clearly the chemo he had been on was not working and thus it’s been discontinued. He has limited options at this point. The clinical trial we've been looking towards still has not opened, and even then Steve is #5 on the waiting list. There is another maintenance type oral chemo drug out there with a record of limited effectiveness and worse side effects than the one he just got off. Not a promising or appealing option, but he’s willing to give it a try if it will buy him enough time to get into the clinical trial. Meanwhile, it will be a few weeks until he can start on the new chemo, so Steve will be off treatment until later this month, and it could be several weeks before there’s any news regarding his eligibility for the trial.[...]
Not too much to report since the last update. Steve is on the third cycle of the oral chemotherapy that he began in June. The biggest difference that he has noticed between it and the IV chemo is that there’s no rebound or feeling more normal between cycles. The fatigue is persistent. In spite of this, he is keeping up with work and doing some music gigs (check the calendar tab for dates and venues), as well as enjoying visits with family and friends.
Steve is scheduled for a CT scan at the end of the month. This will give us a better picture, literally, of how well the current chemo is working to slow the growth of the liver tumors. So there will be a post early next month after we’ve met with his oncologist to discuss the scan and next steps.
As always, thank you for your support and care.[...]
Steve is now 6+ weeks post-surgery. Recovery has been slow, not unexpected considering how severely compromised he had become in the months leading up to the surgery. With a real concerted effort, he has finally regained a little weight! Thanks for the many suggestions for and contributions of appetizing and nutritious meals and snacks.[...]
Turns out that Steve did not have an abdominal infection after all; whatever was going on with his white blood count resolved itself without intervention, so last Friday with everything else looking good he was cleared for discharge. Things are going well at home so far. The biggest challenges are keeping him well-nourished and gaining weight. So we’re trying to be creative with ways to pack on the calories and nutrients in enticing small bites (any suggestions?).[...]
Welcome to the Steve Wing support family! This site is for family and friends, old and new, to organize our efforts to support this extraordinary person. This page will serve as your home base for rallying the troops, receiving updates to support Steve Wing. Here's the plan:
Your First Step: Please take 30 seconds to click on the "Follow" button on the top right of this page. This will allow you to receive updates, read journal entries, make donations, share Steve Wing’s story on social media, and help the family with week-to-week calendaring needs. Though not mandatory to follow Steve Wing’s page, we encourage you to easily create an account with your name and email in order to be able to post photos, leave comments and sign up as a helping hand on the Calendar page. Feel free to upload a photo of yourself to your profile so we can get to know and recognize others on Steve Wing’s support team. After clicking “Follow” above, read on to learn more about what you can do to help.
Journal: This tab is where you can read the latest entries posted for Steve Wing and our support team. You may see additional authors writing updates here to help alleviate pressure for Steve Wing and expedite information sharing. Each post is followed by a photo and name of the author of the entry. You can reply with supportive comments to any journal entry, or click on the name of its author to send a private message.
Posts: This is where you can leave an encouraging message for Steve Wing and family, and to read thoughts left by others! If you have something pressing you'd like suggest that everyone sees (e.g. a fundraiser or upcoming event you're spearheading), please don't hesitate to contact us via private message so we can consider sharing it more widely in the Journal sections. There will undoubtedly be many coordinated efforts and events ahead, and we want to make certain they’re organized and publicized through this site to help drive the greatest possible impact.
Calendar: Please see this important section to learn what the family needs NOW. This will be an especially helpful section for locals in close proximity to Steve Wing. This is an up-to-date calendar which will list the family's immediate needs such as child-care, rides, and meals to help most in the short term. If you see a need posted and can fill it, please sign up through the calendar page directly (i.e. not through private communication) to let us and others know that you've committed to that need. Please check back often to help out with the most recently posted needs!
Notifications: After clicking “Follow” above, you’ll then see a tab to manage “Notifications”. If you feel you’re receiving too many or too few email notifications, please check this section to tailor notifications to your areas of interest. For example, if you want to receive journal updates but not new calendar posts, or any combination of notifications from this site, you can do set them to your preference this section.
Don’t Forget! If you haven’t done so already, please click “Follow” on the top right. It’s your very next step to showing your support!