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Uplift Mark Benefit Fund - Journal

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Posted 2017-10-16T00:16:06Z

Taking the new ALS drug!

This month, Dad began treatment with Radicava, which was just approved by the FDA this summer. It is the first new treatment for ALS in 22 years! It is not a cure, but the medication has slowed progression in some patients, and patients occasionally have shown improvement. There are few side effects, however, some people have an allergic reaction. So far, he has had no problem! The medication is given through IV infusion for 14 consecutive days followed by 14 off, repeating for 6 months. They taught Mom how to administer the medicine at home. You can read more about Radicava here.[...]

Posted 2017-10-14T23:23:09Z

Fundraiser update & eye-tracking machine

An update from Dad on 9/26: 

I would like to thank all the people who made the fundraiser at holycross last Saturday sucha great success. Including my brothers and sisters. All the different people and groups including CRECHE AHG, Knights, Marmion, Rosary. I would like to thank Fr. Parker and Fr. Twenty for all their prayers and support. I would like to thank all the people who came out to support the event! Your generous heart will not go unrewarded by God. My family prays for you every night.[...]