Share. Connect. Love.
In discovering all the things that have been going on with my body, I have beccome starkly aware of various atttributes that overlap each other in their course of progression.[...]
This is an excerpt from the Paper written by renowned Neurologist "Masel":
"......The purpose of this paper is to encourage the classification of a TBI not as an event, not as the
final outcome, but rather as the beginning of a disease process. The paper presents the scientific
data supporting the fact that neither an acute TBI nor a chronic TBI is a static process—that a
TBI impacts multiple organ systems, is disease causative and disease accelerative, and as such,
should be paid for and managed on a par with other diseases.
Despite the fact that patients with a TBI who survive the acute event do not die of their brain
injury per se, a TBI is a disease......."[...]
Poly-trauma: or multiple trauma is a medical term describing the condition of a person who has been subjected to multiple traumatic injuries, such as a serious head injury in addition to a serious burn. It is defined via an Injury Severity Score ISS >=16.[...]
There have been so many new developments in the last month. More on this in some further posts. However, for this one, here is a bit of something that just touched me immensely.....[...]
The 1-10 scale. I don't know about all of you but I detest this scale. It is so basic yet so difficult to pick a number at least to me anyway.
I can honestly say my 2 and 3 now would have been determined to be a 10 by me and taken me to ER over a year ago. However, there is something about living through polytrauma and having a closed head injury, and ongoing chronic pain on top of it all that changes the way I interpret my pain and tolerance levels.[...]
Sleep....or should I say the lack thereof. I just have to say that the me "before" and the me "now" have very different sleeping schedules.
I will say I suffer from a really screwed up sleeping schedule now. I have numerous nights of insomnia. I don't know why I feel shame about this when speaking to my healthcare providers. It's ridiculous to feel shame for something I am unable to control. Yet they speak about "sleep diaries" and "good sleep hygiene" and then tell me I should try to "avoid naps during the day". This became such a toilsome burden to me to get back to a sense of "normalcy" and be able to report back to them that I was a good girl and doing what I should be doing to make myself well.....to make my brain well.[...]
