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Lyla's been on steroids for three days so far and although her extreme crankiness at times is enough to make us go crazy, we will put up with it forever if we have to because it's working! Her platelets have already responded and increased to 63k!!! [...]
Earlier today we received the seal of approval to head home tomorrow, almost a week early from Lyla's big +100 mark. Unfortunately our excitement was shot down a few hours later and it looks like we will be staying at least another two weeks :( Lyla's final blood draw showed her platelets dropped significantly in the last 4 days. We even went back in to check it wasn't a bad sample but it was confirmed again. They have dropped to levels just after transplant - going from over 200k a week ago, too 100k 4 days ago and now 30k. Because all her other blood levels are good, it's likely an immunity issue - her now mature cells are creating antibodies to stop the platelets from functioning properly. This is obviously very concerning but her head doctor is confident it can be fixed with steroids. Lyla can stay out of the hospital but her levels will require close monitoring (lower than 10k can be life threatening). And, the steroids will weaken her immune system even more so going home is not an option. And unfortunately it's going to be a slow process. So.....we are settling back in for at least another two weeks. Fingers crossed Lyla's cells react to the steroids and it doesn't become a major issue.[...]
Surgery went as planned and Lyla is out of the hospital and sound asleep! :)
We are feeling very happy and like a huge weight has been lifted because this was a big step in her recovery process. Just a few more weeks to go![...]
Lyla has been doing great the past few weeks and we have a game plan for going home! The plan is for us to leave in just a few weeks and a few days before Lyla's 100th day since she is doing so well![...]
