Donor found
We received amazing news yesterday . Minissota have found an umbilical cord donor for Lyla's transplant. It is a perfect 6 out of 6 match which is a huge huge relief . All going well, Lyla is set for her transplant in mid July . [...]
We received amazing news yesterday . Minissota have found an umbilical cord donor for Lyla's transplant. It is a perfect 6 out of 6 match which is a huge huge relief . All going well, Lyla is set for her transplant in mid July . [...]
After a long week in the wonderful university of Minnesota children's hospital Lyla, Helen and I are heading back to phoenix. All the doctors and nurses were amazing and Lyla was fascinated by all of them. Lyla successfully had a blood transfusion on Thursday and on Friday she went under and had ear tubes fitted along with an iv port and feeding tubes. She had her first dose of enzyme treatment today and was feeling her normal self by this afternoon. The next step is to sit tight back home and wait to find a doner, which could be as quick as 2 weeks. Lyla will be having weekly enzyme therapy at Phoenix children's hospital For hopefully 8 weeks before heading back to Minnesota . Lyla gives you all lots of kisses for caring about her x x x x x x x x[...]
GREAT NEWS
lyla has just come out of surgery and doing great. She had 4 procedures done so she is going to be a tired girl today. 1 of the surgeons has teenage girls so instead of doing the incision high on her chest where it is normally done he did it on her side at the bra line so it won't be visible when she wears her prom dress. What a sweet guy. [...]
Lyla was admitted into the hospital this afternoon to get ready for her pre-transplant operations tomorrow. She just received a blood transfusion to get her hemoglobin levels up and she's now starting on Milrinone which will also help her heart not have to work so hard. Going into any operation with heart problems is concerning but we feel confident that the medicine and extra blood will help a lot. [...]
All smiles as we kick off Lyla's transplant process in Minnesota this week![...]
This is our first journal post about Lyla and we have a lot to update everyone on already! We've had a very busy three days so far in Minnesota, kicking off the process for Lyla's stem cell transplant.[...]