Levi is doing better and stable now. He is however very sleepy. They will continue to monitor him in PICU and adjust some of the meds to see if that is the cause of his extra sleepiness. His excess abdominal fluid (ascites for you medical types) is also improved. This is good news as he will be more comfortable without a big ol' belly full of fluid. [...]

Levi has been doing well and there were even some signs that his kidneys are improving.  Today, however, his blood pressures were a little low so he has been transferred back to the PICU for extra support.  
Right now they are evaluating for causes and giving him extra oxygen to keep him comfortable.  Levi has been resting, looking cute and being Amazing - so just another day for him.  Let’s hope it’s a short visit and we get back to steady improvements soon![...]

Levi received a special song all about him!  This is such a wonderful gift from the folks at the Songs for Love Foundation. 

He's still out of it, but we're hoping that he'll be able to enjoy the song to its fullest in the next few days. The doctors have made some adjustments to help with the delirium so he can be more interactive. His kidneys seem to be doing better (yea) and he'll be getting a replacement tube to help drain the fluid from his abdomen.  Continued prayers that everything goes as planned and he becomes more aware are greatly appreciated.    [...]

Levi has been holding steady - tolerating his dialysis and doing well with his breathing.  Every once in awhile he needs a little bit of oxygen, but he is still doing great when only 10 days ago he needed the full breathing tube.  [...]

The Amazing Levi continues to impress us every day.  He has been able to wean down on his oxygen.  This has been great because he isn’t as tied to machines and has been able to go out on a few stroller rides with the whole family.   In between he is enjoying reading stories and has started to talk to us just a little.  We are hoping he can start saying even more over the next few days because we love to hear his sweet voice![...]

Levi was doing well enough to go on a short stroller ride around the unit. He's a little more awake and becoming a bit more mobile (yea!). His kidneys still need to do some work but he amazes us every day with his strength and cuteness! We're so proud of him and Beth and Zack too. Good job little man! Enjoy the ride and show off your amazing self! [...]

We are so happy with the progress Levi is making…. He has done well without the breathing tube and even has been able to take breaks from the bipap mask using just extra oxygen in his nose.  He’s been opening his eyes more and more although he’s still spending most of his time having dreams and visions of Blaze.  We are hoping with continued decrease in medications that he’ll be better able to interact and still be comfortable.  Those kidneys have made some slow progress, but we need them to wake up more before he can be off of dialysis.  And through it all. he’s still as handsome as ever![...]

They were able to take the breathing tube out - yea!!!   He is still requiring support with this face mask called Bipap but he’s done really well so far.  Big goals for today include making more urine (Come on kidneys remains our chant!) and weaning down some of the medications that are making him sleepy.  We’re so proud of him![...]

Levi continues to amaze us - that’s what The Amazing Levi tends to do - and is making small improvements day by day.  You can see that he is now better able to move his arms, giving a couple waves and going for double hand holding when he can.  He is still improving on his breathing and we’re getting closer to getting the tube out.  
He is tolerating dialysis although still no urine so we’re still keeping prayers going for those kidneys.  He still has a lot of fluid on his belly and we’re trying to make adjustments to keep him comfortable.  He had another visit from his big brother this morning and Owen was so excited that he was looking right at him! [...]

Levi is still needing more support for his kidneys so dialysis continues.  He has been doing what are called “pressure support trials” to see how he will handle being off of the ventilator and those have gone well.  So, we are hoping to continue to tune things up so that he will have the best chance of getting rid of that tube.  
In the meantime, his nurses have been great about moving lines and machines to make sure that snuggles remain a key component in his treatment.  And for that part, he has many willing volunteers!!![...]