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Levi - Journal

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Posted 2020-06-29T19:18:55Z

A Day of Rest...

Levi's surgery went well. He is sedated and no seizures. [big collective sigh of relief] 

Everyone is resting today because Levi has another surgery scheduled for tomorrow. This will be for a lumbar puncture and to place a port for his chemo to begin.[...]

Posted 2020-06-29T03:37:00Z

Surgery

Levi is heading into surgery late this afternoon, about 6:00 p.m. The doctors are checking his shunt to make sure it's draining properly and they will put in an external drain as a back up to keep the pressure off his head. This upcoming week will be extremely tough on this little guy.[...]

Posted 2020-06-28T14:42:42Z

Another tough night...

Levi had a tough day and night. He had some changes in his heart rate and blood pressure, and started having seizures again. The doctors tried to control them, but it did not work and Levi had to go back to the PICU. In the PICU he was and put on stronger medication to control the seizures. He also had to be intubated again due to the medication having a sedation effect. [...]

Posted 2020-06-27T01:49:00Z

The back story...

Welcome, and thank you for following Levi on his journey. This first post will be a bit long as in less than two weeks a lot has happened. 

Before we get into Levi's story, a little bit about his amazing family. His mom, Beth, is a science nerd and loves soccer, and his dad, Zack, served our country and can be found four-wheeling on a good weekend. But mostly, they are truly AMAZING parents. In fact, we (all the siblings) are a bit jealous of their parenting skills. Big brother, Owen, is six years old and loves Pokemon, the weather, and telling jokes. His jokes are HILARIOUS, just ask him.  Levi, three, is a charmer, loves Blaze from Monster Machines, and really wants to know "what your favorite color is" but will tell you that you're wrong. You'll learn much more about them and their families as we go along. [...]