Happy July 1
Sweet snuggles and sweet dreams.
[...]
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Both procedures went well! [...]
Levi's surgery went well. He is sedated and no seizures. [big collective sigh of relief]
Everyone is resting today because Levi has another surgery scheduled for tomorrow. This will be for a lumbar puncture and to place a port for his chemo to begin.[...]
Levi is heading into surgery late this afternoon, about 6:00 p.m. The doctors are checking his shunt to make sure it's draining properly and they will put in an external drain as a back up to keep the pressure off his head. This upcoming week will be extremely tough on this little guy.[...]
Levi had a tough day and night. He had some changes in his heart rate and blood pressure, and started having seizures again. The doctors tried to control them, but it did not work and Levi had to go back to the PICU. In the PICU he was and put on stronger medication to control the seizures. He also had to be intubated again due to the medication having a sedation effect. [...]
Welcome, and thank you for following Levi on his journey. This first post will be a bit long as in less than two weeks a lot has happened.
Before we get into Levi's story, a little bit about his amazing family. His mom, Beth, is a science nerd and loves soccer, and his dad, Zack, served our country and can be found four-wheeling on a good weekend. But mostly, they are truly AMAZING parents. In fact, we (all the siblings) are a bit jealous of their parenting skills. Big brother, Owen, is six years old and loves Pokemon, the weather, and telling jokes. His jokes are HILARIOUS, just ask him. Levi, three, is a charmer, loves Blaze from Monster Machines, and really wants to know "what your favorite color is" but will tell you that you're wrong. You'll learn much more about them and their families as we go along. [...]
Levi doing his ninja kicks and knocking out the panda. (no actual pandas were hurt during this video)[...]
Welcome to the Amazing Levi's support team! This site will be your home base for updates on the Amazing Levi's journey. Here's some logistics:[...]