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Redden Leo - Journal

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Posted 2015-05-30T04:25:00Z

Day 134- THE BIG TRIP

We are back from an incredible trip! Refreshed, a little more relaxed, and MOST importantly, armed with answers that led to DECISIONS. 

Where do I start? From start to finish the whole thing was incredible to watch and took an absolute army of people. I'm still reeling from how many! Within only a day of posting about our needs to make the trip happen, they had all been met. This was an incredible gift as it freed my time up to hound all of the doctors we hoped to meet with during our visits. It took a tremendous amount of fenagling, but we were able to line up all the necessary appointments in the nick of time. And only a week after we made the decision to go, it was 5:15am and we were heading towards the airport, three very excited pajama-clad kids in tow.[...]

Posted 2015-05-07T17:35:00Z

Day 111 - HELP

This week we had the first of several in-person consultations to discuss surgery. Every time I even think about a moment of him laying on that operating table makes me ill. Patiently, our oncologist and surgeon walked us through every single detail of the surgery and answered all of our questions. I made it almost through the whole conversation until the very end, when I finally was able to ask where they would cut. When he drew the line across the majority of his abdomen, I died a little inside. I just... I feel so helpless.  [...]