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Walker McKnight - Journal

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Posted 2019-04-25T01:48:31Z

4-24-19

From his beloved Mema to his family

Loved ones - it was a roller coaster day - that is the only way to explain it - many things happened - and there were moments in my humanity That i allowed that terrible doubt to slip in - but just for a second - all in all - even though I have only been there yesterday and today - as all of you have told me - during my absence because I had been sick - my time would come - and in Gods perfect timing - I believe it has - each of you stepped up and were “there” - when I could not be - fixer that I am - I had to learn I can’t FIX anything - so painful as my first day was yesterday - “I will not give up unless I am absolutely forced to “- as none of you will - today I saw such a difference - such a difference - not only with our Walker - but with his mama - we got this now - we all do!!!!  His mama and I were both very truthful today with Walker - we had WONDERFUL “conversations” with him - he knows now and understands the direness of the situation - and I believe with everything in me that HE WANTS TO LIVE - and he understands what he has to do ---we all - including PT worked him hard today - we stood firm - did not relent - I laid out a time frame for him - and we will continue tomorrow but even more intense than today - and the next and the next - God has something special for Walker - something that he would have never dreamed of nor would we - but I believe he has a purpose and he WILL fight and live ---and fulfill this purpose - so to me - this was a wonderful roller coaster day - I am excited to awake tomorrow and continue Walkers Journey Home - miraculous that it will be - how blessed each of us are to be able to be a part of this - I love all dearly - everyone Give it to God and GO TO SLEEP tonight[...]

Posted 2019-04-23T20:49:56Z

4-22-19

“Hello” says Walker, his first word spoken yesterday since March 16th. Then he said, “I’m sorry” to nurse staff, I think for being difficult, so sweet. Today he said, “I love you all” to his mom, dad, grandma, and auntie all watching him in rapt attention during his 2nd day of speech therapy.[...]

Posted 2019-04-21T21:05:48Z

Easter Sunday 2019

We are very blessed to be under the cover of his wings, majestic wings that rose to a glory beyond all others to rule over heaven and earth, our Jesus! Today is our Super Bowl Sunday to celebrate the spirit of Christ being alive and among us. His spirit hovers over Walker keeping him Walker Strong as he faces the challenges ahead, challenges that he can overcome as he is lifted in prayer by many, many believers. Stay Walker Strong!![...]

Posted 2019-04-19T17:19:26Z

4-19-19

From his Auntie Gail :-)

4/19
Today marks the end of a very tough week for Walker. Critical changes requiring 6 procedures including surgery.
The days and weeks are flying by, as it has been six weeks since Walker began this journey in intensive care.
He is hanging tough and taking things well. His regimen is to get moving and stand several times a day, resting in between. One of Walkers doctors said he hit “cruise control” today! Let’s pray he cruises through the weekend with no extra difficulties. The medical staff in the ECMO unit, continues to exceed all expectations in delivering his complex care!
Have a blessed Easter weekend celebrating the Resurrection of our Savior and Lord!![...]

Posted 2019-04-17T21:38:41Z

4-17-19

Honestly, I haven’t wanted to do an update not because Walker isn’t doing better, he is, but out of sheer exhaustion. Nothing can prepare parents for this kind of duty. Taking comfort in speaking with others that have breathed the rarified air that comes with care giving through extreme illness.[...]

Posted 2019-04-14T20:17:25Z

4-14-19 Palm Sunday

Walker got to test out his new bed today that stands you up automatically so your on your feet. Works great and will make it much easier to get him up repeatedly so he can get moving. Moving now is very key to his recovery. All his vitals are good, he is pretty well off almost all major meds, and he is alert and aware.[...]

Posted 2019-04-13T19:27:22Z

4-13-19

Our family calendar said today - “Count the garden by the flowers, never by the leaves that fall. Count your life with smiles and not tears that roll.” Quiet day overall for Walker, but I did see a real smile on his face 15 min ago and it was for the cleaning lady, Nikki, that has been cleaning his room since he arrived at the ECMO Life Suites :-). That was sweet!! Very sweet to see. A humble soul.[...]

Posted 2019-04-12T18:21:33Z

4-12-19

Busy day for Walker so far. He headed to OR this am for a new tunnel catheter to replace the groin catheter started initially for dialysis. All good. Then back to room where they put back one of his chest tubes into left side to help drain off fluids. Last, he just has a bronchiole lavash and scope by Dr Kim to get a closer look at his lungs. No big deal, it’s all in a McKnight Life.[...]

Posted 2019-04-11T21:37:39Z

4-11-19 on Walker Watch


We had a consult today with a transplant pulmonologist, Dr Kim, who informed us that it is a very real potential of a double lung transplant. It does not mean that it will happen but that it is a real possibility if his lungs do not improve. So please pray for a miracle that his lungs heal.[...]