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A bump in the road
Yesterday was a hard day and a good day all the same. Getting rid of the ECMO machine was scary for Walker who had come to rely on its support after 63 days of having it there as needed. So he was very anxious and he went from being cold all the time to being hot now. So this made him feel strange. He told the staff he wanted rest and that he would not walk.[...]
After 63 days on ECMO, it’s now been removed!!!
it seems just incredible because it is just that, thanks be to God Walkers life has been saved by using this amazing machine. And thank you God for giving Walker such a great team of Doctors- thank you Dr. Silvestri, Dr. Botta, Dr. Johnson, Dr. Cooper, Dr. Haim and many others for your amazing work in managing Walkers care to date. And thank you to all the awesome Nurses - Tiffany, Amanda, Melissa 1 and Melissa 2, Hannah, DeeDee, Dean, Stacy, Ryan, Alex, Jennifer, Mary, Wanya, Aimee, and many others. And thank you Alex, chaplain, and Jeremiah, critical care social worker.[...]
After 2 solid days with no ECMO support, tomorrow is the big day! He is scheduled to have the surgery to remove the ECMO lines sometime tomorrow. This is big!! We are very blessed indeed. Ours is not to ask why through the valley but to seek enough nourishment to continue to the journey through the day to witness what comes next. [...]
A very! Good day
3 full laps around the floor for a total of 628ft and he was the 1st patient ever to do a standing tuck backflip while on ECMO :-). Ok so it wasn't a standing tuck or a flip but he thought about it![...]
Answer to prayers!
Our prayers from yesterday to blanket Walker in the peace of Christ, for supernatural healing, and a spirit of cooperation were certainly answered today. [...]
Yesterday, today, & tomorrow
Yesterday was a pretty good day as they wheeled the vent machine out of the room to a nod of good riddance by our patient. Walker a bit begrudgingly, walked twice around the floor. Keeping his stats in good shape all the while. [...]
A banner day!!
He took the swallow test today and passed!! Woop Woop Woop. Now they will begin introducing liquids like naked juice, yogurt, and the like into his diet. He is super psyched to say the least. He walked lapping the floor twice today in am and pm so getting stronger each day. [...]
A good day!
All Walkers stats are looking good. Lungs better and he’ll get to take them home with him when he leaves walking out the door of Advent Health Orlando. :-) They reduced his trach size from 8 to a 6 as they will continue to step down the size till not needed. His ECMO setting is down to a 2 and they will continue to wean him off it over coming days only removing when they think he won’t need it again. [...]
As a nurse on the ECMO unit so aptly put it today, “people love the ECMO machine when their loved one first gets on it and they hate the ECMO machine at the end.”[...]
Praise report!
He walked down the hallway around the corner to room 7 and back and did it on sweep of .5 (very little oxygen support from ECMO). Of course they have not told him this but right now all his support has been off for about 5 hrs which is very very awesome!! He had to have a new pic line placed today and the other pulled which is painful. Overall it was another good day đź‘Źđź‘Źđź‘Ťđź‘Ťđź‘Źđź’Ş[...]
